• Uncategorized

    Tips for supporting your fatigued friend

    My fatigue has flared quite badly recently, and I’ve come to realise that it’s hard for people to understand how that feels. In a bid to help that I thought I’d give some tips for supporting your fatigued friend. Fatigue is a difficult thing to understand, because everyone knows what it’s like to be tired, to need a nap. However, if someone is suffering with long Covid, ME/CFS, or has fatigue as a symptom that goes alongside their illness, it’s a very different thing. We in the chronic illness community have tried many different ways to explain fatigue, from rechargeable batteries to spoons but at the end of the day…

  • Uncategorized

    Accessible Gift Guide 2021

    So I have been thinking, and I am sure most people don’t know what disabled people would want for Christmas so I thought I would do an accessible gift guide 2021. I hope this will give your friends and loved ones some ideas. I recently did a video, which I will post at the end of the article, where I gave some ideas on different presents they could get someone who is disabled. Now clearly, we are all individuals and all have different hobbies and interests and things we love, so I have put this gift guide into sections so it will help with that. Hopefully I can include things…

  • Health Update

    F is for Fatigue

    When I was a child I loved Sesame Street, and at the moment I cannot stop thinking that F is for Fatigue would definitely be one of my words of the day. It feels so overwhelming and I am struggling to think straight but I am trying not to let it steal my joy. Fatigue is so much more than just feeling tired, its a heavy, overwhelming feeling that makes everything, including your thoughts feel like you are swimming in molases. The thick, dense liquid means that moving your limbs feels impossible and your thoughts appear to move slowly through your mind. I am forgetting things, dropping things, losing track…

  • Health Update

    The worst flare in a while

    I am currently experiencing the worst flare in a while of my chronic illnesses and I am really struggling, so lets talk about how it happened and why its a lesson to learn from. I often talk about my chronic illnesses, and I try my best to show you how to keep them on a consistent level and to be honest I have. I rarely go out, I use mobility aids so when I do go out I don’t do too much, and I live a life that is well paced out so I don’t flare too badly if I do flare. However, I recently went into our little town…

  • Mental Health

    Invisible Disabilities Week 2021

    It is Invisible Disabilities Week 2021 and as an advocate, carer, and person with invisible illnesses I wanted to talk a bit about my own experiences. I hope this article helps you to feel a little less alone. I am on TikTok and I tell you this because most days I dance on there to show my vintage style outfit of the day, and if that was all you saw me do you would probably assume I was well. I don’t usually use a mobility aid around the house, and so I don’t usually have one while I dance, but I am disabled. What you cannot see is chronic pain,…

  • Uncategorized

    Back care awareness week 2021

    It is Back care awareness week 2021, and this time they are concentrating on the affects of working and studying from home and people spending more time at home. Being more sedentry can cause back problems so lets chat about them. I remember in the first pandemic lockdown, thinking wow people are finally going to see how we feel as chronic illness sufferers. They will have to do everything from home, unable to just pop out to shop whenever they want, and unable to go to live shows and things they take for granted. And at first, it really felt that way, with plays and concerts suddenly online, and people…

  • daily blog

    How balance affects confidence

    I think it is so important to chat to you about how balance affects confidence, I have seen it in myself and my mom who has Multiple Sclerosis. Not knowing when you are going to fall leaves you with a fear that is always there and I think its time we talked about it. It is Balance Awareness Week which is set up by the Menieres Society and something that has affected my own and my mom’s life as we both battle chronic illnesses. I was trying to do some research for this article and could find hardly any information about confidence and balance that wasn’t written with the elderly…

  • Contributed posts

    How to Cope With a Loss

    Losing someone is never easy. It can be challenging when it’s a family member or loved one that passes away. However, there are certain things you need to do to cope with the loss. First, accept what has happened and try not to deny your feelings about it. Acknowledge them, but don’t dwell on them too much either because this will only make you feel worse after the grieving period. Here are more ways to cope with a loss. Give Them a Befitting Send-Off If you face a loss, the best way to cope with it is by giving them a befitting send-off. This could mean anything from having their…

  • daily blog

    Dealing with Painsomnia

    After spending a night in pain and awake I thought we should have a chat about dealing with painsomnia, something those of us with chronic illnesses know a lot about. Last night I went to sleep at about 11pm, and was tired usually by the evening I need to sleep and I was exhausted and looking forward to a good nights sleep. Just a couple of hours later however, I was awake and trying to get comfortable it didn’t matter which way I lay I just wasn’t comfy. This is unusual for me thankfully, and though I wasn’t aware I was in pain I felt like my legs just didn’t…

  • You tube

    Migraine awareness week 2021

    It is migraine awareness week 2021, and raising awareness for this is so important to me because they were the first sign to me that I had a chronic illness. Far too often though, people suffer with migraines feel alone and lost as to where to get help and understanding. When I was in university I started to have migraines a couple of times a week, I was training to be a nurse and I thought I would have a lot of sympathy. Instead, I was made to feel as if I were asking for time off because I had been out drinking, or was faking for sympathy. My chronic…