Things I wish people wouldn’t say about my chronic illnesses
In this weeks post, I thought I would talk about things I wish people wouldn’t say about my chronic illnesses. This is an important one for people in the street!! Most people who know me well, don’t chat much about my chronic illnesses because honestly it’s not the most exciting or interesting thing about me. Thankfully it can blend into the background and I can just be me. However, when meeting new people or being out of the house, I often find myself on edge and anxious about the people who will see me. Will they make assumptions about me based on how I am walking, if I am using…
Good and bad days with chronic illness
The difference between good and bad days with chronic illness can be almost unrecognisable, and yet most people only see us on good days. So lets chat about it. I think most people know someone with chronic illnesses, whether we realise it or not, it could be a family member or that quiet woman at work. Many people who struggle with them try their best to not be a burden, myself included. Being a carer for my disabled mom, I rarely ask for help unless it is from my husband who is wonderful at looking after us both. And because family do not see me on a bad day, they…
Prioritise self care days
As the holiday season approaches, I thought we would talk about why it’s important to prioritise self care days. This should be all year, but I know what we are all like! Recently my life has changed, the amazing woman who redesigned my blog, YouTube and social media has become one of my closest friends. She introduced me to roleplaying and table top games, and I started going to a club for it once a week. However, in order to be able to do this, I have had to start prioritising self-care or it would have resulted in my illnesses getting worse. I already look after my mom and run…
Key Tips For Helping Someone With A Chronic Medical Condition
Living with a chronic medical condition can make many aspects of life harder than they need to be. People with chronic conditions will need more support than the average person, but how do you help them? It can often feel like an impossible task as you know the person is struggling or in pain, yet you also know that their problem will never go away. You start to feel helpless of assume that there’s nothing you can do to help. Some people go the other way and become overly helpful. That may sound weird, but anyone with a chronic condition reading this will know what it means. Yes, people want…
Items that help me live with chronic illness
Shockingly I have never spoken about the items that help me live with chronic illness, but it’s important to share what gets us through the day. So, my life is lived I refuse to just survive or push myself through the day I want to enjoy my life with the chronic illnesses that I have. I love to visit museums and I vlog my days out on my YouTube channel, and I write about how accessible it was here on the blog. I know the media likes to paint us as people who just do not want to work and would rather sit watching TV all day. However, I know…
World Mental Health Day 2023
Yesterday was World Mental Health Day 2023, but here on the blog we believe that every day is a chance to raise awareness so lets talk about it. This year, MIND is raising awareness of how inpatients are treated which has not been updated since the Mental Health Act was written 40years ago. So much has changed since then, from within the medical community to how society views mental health issues. It might have surprised you then to see how long it has been since the laws were created and have not been revised. I started to struggle with my own mental health when I was at school, I always…
Some things I wish I realised before my chronic illnesses
Today I thought we would talk about something a little different and look at some things I wish I realised before my chronic illnesses. My life was very different before I became sick, I honestly didn’t really think about sickness unless I had a cold or something. Back then there were signs of illness gathering, but I never connected the dots and I didn’t really do much to look after myself. I struggled with eating back then, often skipping meals or eating very small portions so that I wouldn’t put on weight. I did not think about the impact of my lifestyle on my health, or how my chosen profession…
How accessible is Brampton museum and art gallery
Last week we had a lovely day out so lets chat about how accessible is Brampton museum and art gallery? I love doing these posts, I know many in the disabled community struggle to organise days out and have limited time or energy. This is why when I go out to somewhere new or different I like to talk about how accessible it is so you can plan it better. Brampton museum and art gallery, is in a beautiful 1930s home surrounded with the history of an important area for pottery historically. I loved the setting and the outside of the house is gorgeous there is a separate car park…
Some things I’ve learned being a disabled caregiver
I have been a caregiver for almost three years, so I thought I would share some things I’ve learned being a disabled caregiver. My mom had been living alone for a while, she has multiple sclerosis, but never gave us any indication that she didn’t enjoy it. We didn’t know she wasn’t coping and honestly me and my husband assumed she would tell us if she needed more help. It wasn’t until one day, close to the start of the pandemic, I got a phone call that she had a fall and needed help getting up off the floor. She had sat all day trying to get up and by…
Pain Awareness month 2023
It is Pain Awareness month 2023 and as I have lived with chronic pain for over twenty years, I thought we would have a chat about it. During Pain Awareness Month 2023, I am reminded that many people get confused when it comes to pain, just as they do when we talk about fatigue, because everyone has experienced pain and tiredness. However, when it is pain that never goes, it becomes harder to for most people. This is why it is so important for us as advocates to speak up and be honest about the way we feel and the pain we are in. Raising awareness can only help people…
