Push for what’s right
Last week was not the easiest, I had to go to court to fight to get my disability benefits back. It was so stressful, and caused a flare, but sometimes you have to push for what’s right. I was surprised at how friendly the people at court were, there was a judge, a doctor and a disability specialist. There was also a secretary who took us inside after explaining exactly what was going to happen. They asked us questions rather than letting us talk which was a lot easier. The worst part of the whole thing has been the flare of my illnesses it caused. The travel and the stress…
Taking time to rest
Hey everybody! Wow this last week my fatigue has been pretty bad and honestly I think I have caught a little cold! Now this might seem like I am making something big of a small thing, but it has increased my fatigue and my pain a lot! It’s like my body decided to just give up even pretending to try and work with me and I have been taking time to rest. My chest has been feeling heavy and I have been coughing a little but honestly that is not the problem. I have recently found my legs to have a life of their own and at night my muscles…
PIP benefit and reading help
Hey everybody! It has not been an easy week, if you have been reading my blog you will know I recently had my PIP benefit taken from me. But this week I have had some PIP benefit and reading help which has been useful to me. It is hard knowing that we will have to go a few months without the money we need, but to know it will be back-paid helps. PIP help I am so thankful for my therapist who when I told her we had lost PIP she gave me the number for Cannock Chase advice center. She also gave me some advice on coping with the…
Birthday, bad news and a flare
Hey everybody! So I gave myself last Friday off because Saturday was my birthday and as I had gone out for dinner Thursday I needed to rest. I am sure my fellow Spoonies understand and for that I am thankful! This week is starting off with payback for my birthday, bad news and a flare and I am not happy about it! My birthday was pretty chill, I visited my mother and we had some yummy food and cake and watched Bohemian Rhapsody with friends. It was a fun evening and I was thankful Amazon Prime already have it to rent because going to the cinema can be difficult for…
Flaring But Fighting
Hey everybody! If you read my last couple of blog posts, you will know that the lovely people at the DWP decided to take my PIP benefit from me! The stress of losing my PIP benefit has really hit me flaring my pain, fatigue and depression so I’m flaring but fighting! I have been really suffering with pain especially in my shoulders and arms, and that horrible dull ache in the back of my neck is back! That lovely pain is what triggers a migraine after a while so I am really hoping meditating more and trying to keep moving will help. I feel a little like a zombie at…
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Let’s talk about PIP
Hey everybody! Wow this weekend has been full of tears, panic attacks, and worry…so lets talk about PIP…. If you have been reading my blog for a while you will know that recently I was called for reassessment for both of my disability benefits. I was awarded my ESA after going for reassessment and met all the requirements because I am legitimately disabled and have been for some years. However, on Saturday I got a letter stating that they were stopping my PIP benefit completely this month. Now I want to explain that the person who came to our house to assess me was not the person who made the…
Fighting fatigue and gaining confidence
Hey everybody! First of all I am very sorry I did not have a blog post out to you on Friday last week I think things caught up with me. I have been fighting fatigue and gaining confidence two things that shouldn’t go together but this week strangely do! As you know I had a bit of a stressful week with going to two disability benefits reassessments in one week! I really feel as if dealing with that has increased my fatigue to a point where I wake up a lot later in the morning than usual, and spend most of the morning, laying in bed looking more zombie than…
Dealing with a busy and stressful week
Hey everybody! Wow last week was a bit of a nightmare! It was such a busy and stressful week and that is why I didn’t have a blog post on Friday I was so wiped out and I still am! The week before I got letters saying I have to be reassessed for both of my disability benefits. I hate when they do this and if you are in England and unable to work I am sure you can understand why I was so stressed about it. People who are not specialists and doctors, unlike the specialists and doctors who diagnosed us, sit and ask us questions then someone else…
Cleansing and reassessments
Hi guys! Well it has been a busy couple of days and I am really feeling it now! I just took a 2hour nap and I feel like a zombie but after much thought I decided to update my blog every Wednesday and Sunday and so here I am. Yesterday our friend Tracy came over, she is a lovely person who works with Lee and also practices Reiki. I love meditation and yoga as you all know and this is just another way to keep your chakras clear and your spiritual self protected and healthy. I have been feeling the presence of a spirit in our home that did not…
