Ups and downs
Hey everybody! Well December has arrived, and we are all reflecting back on the year, while either dreading or getting excited for Christmas. As we look back we realise we all have times where we struggle but it is rarely all one way or the other, life is just full of ups and downs. Over the last few days I have been thinking back, and a good way of doing this I realised was to look at my vision board. I have never made one before, but I recently read a book called Moonology where the author teaches you about how to work with the moon and part of it…
I had crystal healing for the first time
Hey everyone! It is true I love alternative therapies and finding new ways of treating my chronic illnesses. So I thought I would try Crystal Healing it is something I have only just heard about but my friend does it so no time like the present! Recently I have had a lot of pain, I had a bout of gastritis and I have a very low blood count at the moment probably because of it. So I have found myself struggling to do things and get things done, which I have to admit is so frustrating at times, but haven’t we all been there before as chronic illness warriors? And…
Looking back as I look forward
Hey everybody! First of all I owe you an apology last week was a bit crazy and instead of pushing out a not so good post I thought I would look after myself and have a week off. However, here you are so maybe I should explain that I have been going through a lot of self-discovery recently and because of this I find myself looking back as I look forward. Last Friday was so exciting I went to the Mind Body and Spirit festival which was held at the NEC in Birmingham. It is not too far from me and I was lucky enough that one of my friends Josh…
When a pain flare is overwhelming
Hey everybody! My pain is flaring at the moment and I will be honest it is kind of worrying and overwhelming! I am trying to keep my chin up and keep going, I think sometimes pain and fatigue can stop us in our tracks then we find our ways of coping; So when we flare it can be difficult to find our feet again because we are already running at a much lower pace than most people could cope with! What is a flare? A flare is when your symptoms get worse but it is because of something you know and you are sure it will get better, for…
Resting leads to guilt
Hey everybody! Well I have been put on antibiotics this week, hence no post on Monday just gone, and I feel awful on them! I am literally sleeping most of the time and to be honest resting leads to guilt, and I have written about this before but the struggle is real! My husband is not feeling too well right now either so I want to be looking after him, instead I am staying in bed all morning, needing baths to help my pain, and not managing to do my physiotherapy or yoga or any housework! I am literally a lump on the sofa and it is not a nice…
When will I ever learn?
Hey everybody! Well now I was going to be good, I was trying to be good but then things happened…I stopped eating well…I started trying to do a yoga challenge…and my pain flared! When will I ever learn? It is so hard because I know what I should do, I know it and I have written about it many times so why is it that I fell off the wagon? Me and my husband were left with fatigue and pain after having a take away pizza, and our diets had run into problems we were not eating the things we knew were good for us. Everyone has good intentions, we…
Frustration and studying with chronic illness
Hey everybody! If you have been following my you tube channel, then you will know that I am currently studying to become a psychic. I have found as the course has progressed however that my chronic illnesses are holding me back and it is so frustrating! My chronic illnesses are Fibromyalgia, Chronic Fatigue Syndrome, Ehlers Danlos Syndrome, Spondylosis, depression and generalised anxiety disorder. They work together to make my life interesting by not only affecting how mobile I am, but also making my memory bad, giving me fatigue, shaking, numbness…the list goes on. I have suffered with many of these my whole life but they started to change things mainly…
Feeling guilt with summer fatigue
Hey everybody! Feeling guilt with summer fatigue is so hard, it seems to take all the motivation out of me! I am trying so hard to keep up with things but all I want to do is sleep and it is not good at all! Here in the UK we are having something of a summer heatwave, and though I am sure a lot of people are really enjoying the sunshine and heat that we are having for a change it is very different for me. I have chronic illnesses that cause fatigue anyway, but when the sun comes out it can make my illnesses unstable and it very hard…
Pushing passed anxiety
Hey everybody! So lets talk about pushing passed anxiety to make your dreams happen and move forward in life. It is something I have been needing to do I have things I want to achieve in life and my anxiety always holds me back and this time I did not let it win! So I am also a You Tuber and a few weeks ago I messaged one of my favourite You Tubers, Miss Mary Lu and asked her if she wanted to do a video together. I was so excited when she said yes because she is such a wicked cool person and she is someone I look up…
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Taking my time coming to terms with new diagnosis
Hey everybody! So a few weeks ago I was told I had two illnesses and you can read about them HERE, so I have just taken myself a little time to come to terms with them. On the one hand, Spondylosis was not a big shock I have been having a lot of upper spine pain and now I know what it is I am happy. I mean well, not happy happy, but now I know what it is I can look up things to help and get practical about things if that makes sense? But with hEDS, I am finding a lot of anger and frustration because as I…
