Rest is Self Care
I think so many of us, disabled or not, think that rest is wasting time or not being productive enough. I felt the same for a long time, but I have found rethinking it as rest is self care really…
When pacing goes wrong
I think we have all had times when pacing goes wrong and end up doing so much more than you meant. It is part of living with chronic illnesses that cause fatigue, and so is the guilt! So I thought…
Disabled community stop doing this in 2021
I think I can safely say you are not alone in doing these things, I am as guilty of it as you are. But disabled community stop doing this in 2021 please? Can we move forward with a collective agreement…
Everyday Sacred Self-care
It can be so hard to think of ways to practice everyday sacred self-care. We all know what self-care is, and that we should do it, but everyday? Today I wanted to speak more about how to bring the ritual…
A chronic illness photography study
Last week I was contacted by Ashley Oman on Instagram, they asked if I could help promote a chronic illness photography study. They are a university student working with two nursing students. Aiming to look into the lived experience of…
Getting back to exercise
Exercise has been important to me for many years now and for a long time I did yoga every day. Looking after my joints and muscles helps my pain and protects my hypermobile joints. But with increased fatigue, and moving…
When fatigue flares
Moving house is always stressful and difficult, even if you don’t have chronic illnesses it can take it’s toll. When fatigue flares it can leave you feeling frustrated and annoyed, or trying to push through so you can get things…
Finding a rhythm
As you know, if you have been following recent blog posts and you tube videos, I have moved with my husband to be a carer for my mother. This obviously caused a lot of worry, stress and change to my…
Dealing with stress
Stress is something we all deal with from time to time, especially when you have chronic illnesses that make every day feel like a rollercoaster. But right now I am moving house while we are in the middle of a…
Finding my feet
Finding my feet recently has not been easy, moving in with Mom to become a carer while dealing with my own chronic illnesses never would be! My mother before now has been living alone in my childhood home, and trying…
