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Tag: ehlos danlos syndrome

Getting back to exercise

Getting back to exercise

Exercise has been important to me for many years now and for a long time I did yoga every day. Looking after my joints and muscles helps my pain and protects my hypermobile joints. But with increased fatigue, and moving house that changed and getting back to exercise has become a priority. I have found since moving and helping my mom, that my own pain and fatigue have increased. This was of course expected, but meant that a lot of…

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Birthday, bad news and a flare

Birthday, bad news and a flare

Hey everybody! So I gave myself last Friday off because Saturday was my birthday and as I had gone out for dinner Thursday I needed to rest. I am sure my fellow Spoonies understand and for that I am thankful! This week is starting off with payback for my birthday, bad news and a flare and I am not happy about it! My birthday was pretty chill, I visited my mother and we had some yummy food and cake and…

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Dealing with a busy and stressful week

Dealing with a busy and stressful week

Hey everybody! Wow last week was a bit of a nightmare! It was such a busy and stressful week and that is why I didn’t have a blog post on Friday I was so wiped out and I still am! The week before I got letters saying I have to be reassessed for both of my disability benefits. I hate when they do this and if you are in England and unable to work I am sure you can understand…

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Repercussions from Christmas

Repercussions from Christmas

Hey everybody! Well Christmas is over, the New Years bells have been rung, and I am suffering the repercussions from Christmas! Thing is I cannot blame anyone at all but myself, and that is the annoying part, I did all the things I should not do I know better!! Over Christmas I started rewatching New Girl which is a favourite of mine and I tend to turn to these sort of comfort shows at difficult times. This Christmas was the…

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Looking ahead at the end of the year

Looking ahead at the end of the year

Hey everybody, Sometimes it takes opening up to make things happen as you start looking ahead at the end of the year. I have been working hard to try not to be a people pleaser anymore but after being one for so long it is kind of hard to just change you know?  However, though I have been working hard to learn to be a psychicover the last two years, it never felt right to me and I was scared to…

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Ups and downs

Ups and downs

Hey everybody! Well December has arrived, and we are all reflecting back on the year, while either dreading or getting excited for Christmas. As we look back we realise we all have times where we struggle but it is rarely all one way or the other, life is just full of ups and downs. Over the last few days I have been thinking back, and a good way of doing this I realised was to look at my vision board….

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Looking back as I look forward

Looking back as I look forward

Hey everybody! First of all I owe you an apology last week was a bit crazy and instead of pushing out a not so good post I thought I would look after myself and have a week off. However, here you are so maybe I should explain that I have been going through a lot of self-discovery recently and because of this I find myself looking back as I look forward. Last Friday was so exciting I went to the…

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Resting leads to guilt

Resting leads to guilt

Hey everybody! Well I have been put on antibiotics this week, hence no post on Monday just gone, and I feel awful on them! I am literally sleeping most of the time and to be honest resting leads to guilt, and I have written about this before but the struggle is real! My husband is not feeling too well right now either so I want to be looking after him, instead I am staying in bed all morning, needing baths…

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Looking back some diagnosis just make sense

Looking back some diagnosis just make sense

Hey everybody! So if you have been reading my blog for a while, you will know that I was diagnosed with two illnesses Ehlers Danlos Syndrome (EDS) and ankylosing spondylitis. Looking back some diagnosis just make sense and for me that is EDS, when I started to research it all just seemed to fall into place. See back when I was a kid I had a lot of problems with my legs, they were constantly painful and the one time I…

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When will I ever learn?

When will I ever learn?

Hey everybody! Well now I was going to be good, I was trying to be good but then things happened…I stopped eating well…I started trying to do a yoga challenge…and my pain flared! When will I ever learn? It is so hard because I know what I should do, I know it and I have written about it many times so why is it that I fell off the wagon? Me and my husband were left with fatigue and pain…

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