Dealing with a busy and stressful week
Hey everybody! Wow last week was a bit of a nightmare! It was such a busy and stressful week and that is why I didn’t have a blog post on Friday I was so wiped out and I still am! The week before I got letters saying I have to be reassessed for both of my disability benefits. I hate when they do this and if you are in England and unable to work I am sure you can understand why I was so stressed about it. People who are not specialists and doctors, unlike the specialists and doctors who diagnosed us, sit and ask us questions then someone else…
Repercussions from Christmas
Hey everybody! Well Christmas is over, the New Years bells have been rung, and I am suffering the repercussions from Christmas! Thing is I cannot blame anyone at all but myself, and that is the annoying part, I did all the things I should not do I know better!! Over Christmas I started rewatching New Girl which is a favourite of mine and I tend to turn to these sort of comfort shows at difficult times. This Christmas was the first since my Grandmother passed away and it didn’t really feel like Christmas! To be honest, it just felt like another day and though I had my decorations up they…
Resting leads to guilt
Hey everybody! Well I have been put on antibiotics this week, hence no post on Monday just gone, and I feel awful on them! I am literally sleeping most of the time and to be honest resting leads to guilt, and I have written about this before but the struggle is real! My husband is not feeling too well right now either so I want to be looking after him, instead I am staying in bed all morning, needing baths to help my pain, and not managing to do my physiotherapy or yoga or any housework! I am literally a lump on the sofa and it is not a nice…
Frustration and studying with chronic illness
Hey everybody! If you have been following my you tube channel, then you will know that I am currently studying to become a psychic. I have found as the course has progressed however that my chronic illnesses are holding me back and it is so frustrating! My chronic illnesses are Fibromyalgia, Chronic Fatigue Syndrome, Ehlers Danlos Syndrome, Spondylosis, depression and generalised anxiety disorder. They work together to make my life interesting by not only affecting how mobile I am, but also making my memory bad, giving me fatigue, shaking, numbness…the list goes on. I have suffered with many of these my whole life but they started to change things mainly…
Body Positivity and Disability
Hey everybody! The summer is here and I am wearing a lovely skirt and a pretty vest top and I should be feeling happy but I am feeling self conscious. I suffered with eating disorders, I look in the mirror and I only see my flabby arms and my tummy that is thin but not at all toned and it makes me feel so deflated. I used to be extremely thin and toned and now my illnesses have worsened and I am struggling to feel any body positivity with my disability! I see all the adverts with the models with perfect bodies, I watch the you tubers working out in…
Dealing with Loneliness in Summer
Hey everybody! Here in England we are having a heatwave, social media is full of people spending time with friends, and almost every night I can hear the sounds of BBQs! Usually this is a time when people get together, and because of this I think my loneliness is making itself known. As you all know, I am working on myself very hard at the moment, meditating like mad and I am currently reading the bhagavad gita. I am trying my hardest to grow and learn and to come to be content in the moment and with the life I have instead of wanting and yearning for what others have. To…
Feeling guilt with summer fatigue
Hey everybody! Feeling guilt with summer fatigue is so hard, it seems to take all the motivation out of me! I am trying so hard to keep up with things but all I want to do is sleep and it is not good at all! Here in the UK we are having something of a summer heatwave, and though I am sure a lot of people are really enjoying the sunshine and heat that we are having for a change it is very different for me. I have chronic illnesses that cause fatigue anyway, but when the sun comes out it can make my illnesses unstable and it very hard…
A change is as good as a rest
Hey everybody! Well we have had quite the eventful week and I really thought it would leave me with a lacking in spoons and increased pain and overall feeling dreadful…I am still waiting for the bump! I guess a change is as good as a rest? Not that my fatigue and pain are not increased, of course they are I still have the same illnesses. However, it is my mood that is different and my outlook, I find myself quite happy to rest instead of feeling like a useless lump and to be honest it is so shocking to me I have to talk about it! Earlier this week we…
Health Update
Hi everybody, So as I sit here writing this I honestly don’t know how I feel about having two new illnesses diagnosed. On one hand it is great to have some answers and to have a plan, but on the other I wanted it to be something they could cure you know? However, I wanted to give you all a health update because I feel like you guys know so much that I need to get this out there. So over the last few months I have seen a headache clinic, and had MRI scans, and seen two rheumatologists. On Wednesday I went to see a new physiotherapist who confirmed…
Making a fresh start after a depression flare
Hey everybody! Last month was pretty hard for me, I lost my grandmother and I turned 40…yeah I did not appreciate that! I got a little lost in everything, grief kind of took over and I stopped doing a lot of the things that I love. I stopped practising yoga, I stopped eating three meals a day, I stopped looking after myself and I was miserable! I was feeling overwhelmed with grief and I kind of shut down because I couldn’t process everything that happened in such a short space of time. I was starting to think that would never clear away and that I would be stuck with my…
