Disability Pride Isn’t About Loving Your Disability
Disability Pride Isn’t About Loving Your Disability; it’s about finding ways to live your best life despite symptoms and abilities that make it harder. Taking steps to make life possible, coping with the ups and downs of life, and not…
Finding Small Joys on Difficult Days
I used to measure my good days by how much I got done; I pressured myself to pushing against my symptoms to ‘achieve’ and it became exhausting. I have since learned that peace, comfort and rest are so meaningful, and…
What a “Good Day” Really Means With Chronic Illness
As someone who has lived with chronic illnesses for over twenty years, I know that ‘good days’ often come with people assuming I am well. People saying I am looking better, or I seem well today do nothing but show…
Wanting to Feel Seen When You’re Chronically Ill
I have had people talking over me and behind me when I’m in my wheelchair, had to say no to plans with friends because it isn’t accessible. I have even gone out with family, only to realise they didn’t book…
When Your Body Says No
Yesterday I went out to get my hair trimmed and to pick up a couple of things from the shops. It’s something most people do in between other jobs, but for me it was a big trip that would have…
Navigating the Holidays as a Disabled Person: Reflection, Access & Care
The holiday season can be so magical, but it can also be deeply overwhelming when you’re juggling health struggles and trying to navigate events that aren’t always accessible. For many of us, navigating the holidays as a disabled person ends…
Disability History Month Reflections: Amplifying Powerful Voices
It is Disability History Month a powerful time to honor the visionary leaders who paved the way, celebrate those still carrying their legacy, and imagine together the future they helped shape I feel inspired by the incredible activists highlighted in…
Accessible Ways to Spread Kindness (Even on Low Spoon Days)
World Kindness Day reminds us that small gestures can create big changes in the world. But for many of us who struggle with disability and low spoon days, it can feel overwhelming and out of reach, but it is still…
Managing Stress as a Disabled Carer
It is International Stress Awareness Week and though this year’s theme is about optimising employee wellbeing I am going to talk about something different. I cannot work, as I am disabled, but almost six years ago me and my husband…
Living Beyond the Visible: My Life with Invisible Disabilities
It is Invisible Disabilities Week and so it is the perfect time to share My Life with Invisible Disabilities. I have lived with invisible illnesses for over twenty years and over that time I have experienced so much, let’s get…
