Am I in a flare?
So if you follow me on Instagram you will know that I have had a busy couple of weeks! I went to a weekend convention to meet some of my favourite Once Upon a Time actors, and then the following weekend we went to London to see Billy Joel in concert. I thought I had rested enough and been careful but then this week I have been asking myself…Am I in a flare? While I was at the convention I woke one morning with a lot of pain in my lower back like I had pulled something or trapped something. I have been treating it with heat ever since however…
Blooming Mindfulness award
Oh my goodness I am so excited and thankful that Back Pain blog UK has nominated me for an award that was set up by Pamela Jensen from There is Always Hope. The Chronically Hopeful Award is, in her words, “to recognise the incredible people who blog about chronic illness, mental health and disability.” This meant so much to me because both of these blogs are favourites of mine who I have been subscribed to for years. Both of these incredible people inspire me to keep writing and to strive to bring some light into this world. There are many blogs out there, but I think all three of us can…
Tips for travel with chronic illness
I am going away this weekend and I am so excited; I am going to a convention dedicated to the TV show Once upon a time! I have been attending events run by Starfury decades and honestly, I think they are the best. The problem is even though I am going away my fatigue and chronic pain doesn’t take a break. I wanted to share some tips for travel with chronic illness because its important to share what works for us. I cannot remember the last time I had a day without pain, maybe never I mean I remember being in so much pain as a child. But as an…
Feeling overwhelmed and lost
Feeling overwhelmed and lost is something unfortunately I have come used to over the last couple of weeks. My health has not been the best, I’m trying to lower the dose of one of my meds, I got a virus that landed me in A&E….yeah it’s not been fun! Let’s start with the opioid crisis, I’m sure most chronic illness warriors have heard of this and it was just affecting America. However, it would seem that our government have taken a note from there and changed one of my meds to a class C drug. So I had to have a phone call with my GP practice pharmacist to see…
Life is like a Tapestry
Hey everybody! Today’s blog post is very much inspired by my friends podcast Hero’s Breath, this podcast is very much opening my mind and I’m very grateful for that. This last week my health has not been great and it has been a struggle, but what I came to realise by listening to this podcast was life is like a tapestry. So often in my life I have been asked how I can have faith in God when there is so much famine, war and pain in the world. How can I love a God that allows people to suffer and animals to be in pain etc, especially by my…
Alternative Marie Kondo method for chronic illness
Hey everybody! Wow I cannot get a hold of my fatigue at the moment, and I think anyone who has the same issue will understand my problem. You see not too long ago a woman gained fame on Netflix for her show about decluttering and she is Marie Kondo! The problem I found was the Marie Kondo method is not really practical when you live with chronic illness and especially chronic fatigue. So, I had to come up with an alternative Marie Kondo method for chronic illness! Chronic fatigue is something that is very hard to deal with because people think it is just feeling tired so they assume if…
Why cinema trips can be hard with chronic illnesses
Hey everybody! I think it is important to look at how disability impacts normal life, and for most people cinema trips are normal. That is why today we are talking about why cinema trips can be hard with chronic illnesses. Avengers Yesterday I went to see Avengers Endgame, and oh my goodness was I excited! I got dressed up as you can see, and we went to the lunchtime showing because we couldn’t wait. However, almost as soon as I came out of seeing the film I was reminded why there are so many films I have to miss. I love going to see a movie, it is one of…
Spring is bringing renewed confidence
Hey everybody! Wow spring has sprung here in the UK finally and it feels lovely to have warm air and sunshine again! I can feel changes in myself and it feels really good because spring is bringing renewed confidence and I am not used to that, it feels pretty good though! If you have been following my blog and my You Tube channel, then you will know I have gone through a lot of changes over the last year or so. I have always tried to walk with God, but I have really found myself open up to true faith that has nothing to do with religion. It has been…
Mobility aids,You Tube awards and Dr Phil
Hey everybody! I am sorry I have not been as reliable with my posting recently, my health was kicking up a fuss and I needed to rest I hope you understand? I was in a flare and I am recovering now but my goodness the house is a mess! You can tell I have not been able to keep up with cleaning and my goodness is it annoying! On top of that this last week has had my attention on strange things like mobility aids,You Tube awards and Dr Phil! So I realised that recently on Instagram, as I scroll my feed, I have been noticing people announcing that they…
Birthday, bad news and a flare
Hey everybody! So I gave myself last Friday off because Saturday was my birthday and as I had gone out for dinner Thursday I needed to rest. I am sure my fellow Spoonies understand and for that I am thankful! This week is starting off with payback for my birthday, bad news and a flare and I am not happy about it! My birthday was pretty chill, I visited my mother and we had some yummy food and cake and watched Bohemian Rhapsody with friends. It was a fun evening and I was thankful Amazon Prime already have it to rent because going to the cinema can be difficult for…
