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Tag: chronic illness

Disabled community stop doing this in 2021

Disabled community stop doing this in 2021

I think I can safely say you are not alone in doing these things, I am as guilty of it as you are. But disabled community stop doing this in 2021 please? Can we move forward with a collective agreement to try and not do these things? I think we are all guilty of feeling like a burden, of feeling guilt or worrying too much what other people think. It is not something we do alone, but these things are…

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Everyday Sacred Self-care

Everyday Sacred Self-care

It can be so hard to think of ways to practice everyday sacred self-care. We all know what self-care is, and that we should do it, but everyday? Today I wanted to speak more about how to bring the ritual into the mundane things we do daily. A few days ago I released a video on my You Tube talking about how it is important to do sacred self care at the end of the year. This time of the…

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A chronic illness photography study

A chronic illness photography study

Last week I was contacted by Ashley Oman on Instagram, they asked if I could help promote a chronic illness photography study. They are a university student working with two nursing students. Aiming to look into the lived experience of duel disasters and and a chronic health condition. This very much interested me, because as we are all living through Covid-19 pandemic, other disasters such as fire or hurricanes for example still happen. Discovering how these stressful situations affect us…

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Getting back to exercise

Getting back to exercise

Exercise has been important to me for many years now and for a long time I did yoga every day. Looking after my joints and muscles helps my pain and protects my hypermobile joints. But with increased fatigue, and moving house that changed and getting back to exercise has become a priority. I have found since moving and helping my mom, that my own pain and fatigue have increased. This was of course expected, but meant that a lot of…

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When fatigue flares

When fatigue flares

Moving house is always stressful and difficult, even if you don’t have chronic illnesses it can take it’s toll. When fatigue flares it can leave you feeling frustrated and annoyed, or trying to push through so you can get things done. Weeks of packing followed by moving in and becoming a carer have left me struggling for energy. I live my life walking a tightrope between those things every day at the moment, frustrated and seeing how much I can…

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Finding a rhythm

Finding a rhythm

As you know, if you have been following recent blog posts and you tube videos, I have moved with my husband to be a carer for my mother. This obviously caused a lot of worry, stress and change to my precious routine that helps calm my anxiety disorder. Finding a rhythm has not been easy for all three of us as we have tried to navigate this change. The dogs, Dexter and Gizmo, on the other hand have loved the…

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Dealing with stress

Dealing with stress

Stress is something we all deal with from time to time, especially when you have chronic illnesses that make every day feel like a rollercoaster. But right now I am moving house while we are in the middle of a worldwide pandemic, and to be honest dealing with stress has lasted a while. I am not alone in this though, lets be honest ever since March when this whole Covid 19 virus ramped up we have all been stressed. It…

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Finding my feet

Finding my feet

Finding my feet recently has not been easy, moving in with Mom to become a carer while dealing with my own chronic illnesses never would be! My mother before now has been living alone in my childhood home, and trying to cope with Multiple Sclerosis. It has only been since moving in that we have come to realise that she hadn’t been looking after herself. Rarely showering because she was afraid of falling, no exercise and a diet of mainly…

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Stress with a chronic illness

Stress with a chronic illness

Well the pandemic is still happening though governments are easing everything to make money again. We are in the middle of moving house just the contracts to sign and to sort out a completion date. And my dad’s dog who used to be mine died, so lets talk about dealing with stress with a chronic illness. I have to be honest and admit that I have been expecting a big flare, anyone with a chronic illness knows stress is a…

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Dealing with overwhelm

Dealing with overwhelm

The world is in the middle of a pandemic, and yet we are easing lockdown here in the UK, people are asking for radical social change and I am moving house! Right now I am very much dealing with overwhelm; That knot of anxiety in my stomach and knowing there is not enough time to get everything done! Moving house is always stressful, it always tops lists of the most stressful things you can do. Our house has very luckily…

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