Push for what’s right
Last week was not the easiest, I had to go to court to fight to get my disability benefits back. It was so stressful, and caused a flare, but sometimes you have to push for what’s right. I was surprised at how friendly the people at court were, there was a judge, a doctor and a disability specialist. There was also a secretary who took us inside after explaining exactly what was going to happen. They asked us questions rather than letting us talk which was a lot easier. The worst part of the whole thing has been the flare of my illnesses it caused. The travel and the stress…
Sleeping and the holidays
So many people love this time of year, but it isn’t like that for everyone and that got me thinking about sleeping and the holidays. I have been struggling with sleep myself after finally fighting insomnia this year to get a regular routine! At first I was puzzled as to why I couldn’t fall asleep, I wasn’t in any more pain than usual so it wasn’t painsomnia. My routine hadn’t changed either and I knew that was important, I even made a video about it on my you tube channel. I just could not figure it out and then I realised it is the end of the year, christmas is…
A new norm to get used to
I think anyone reading this who has chronic illnesses would tell you that after a while you get used to the symptoms. It becomes the norm and before you know it you can no longer remember how it feels to be well. But then something new pops up your head and before you realise it there is a new norm to get used to. This week I had a gastroscopy I had it with sedation because I didn’t want to remember the process, since then I have had nausea and stomach ache. Not that it’s a surprise, but I’m glad I got a chance to have it by the wonderful…
How can I help my fatigue?
How can I help my fatigue? I am sure if you suffer with it you have asked yourself this many times just as I have!
A new daily routine
So, as you know if you are a regular reader of my blog, we got a new dog his name is Dexter and he is a 5year old shih tzu. We have had him a couple of weeks now and he has really settled in well just becoming a part of the family and we love him. However, he is a higher energy dog than Gizmo ever was even as a puppy and I’m trying to work out a new daily routine. Lee is now back at work, so I am with the dogs most of the time on my own they both seem to be battling for my attention…
Reflecting with a goddess
So the other day I was doing a meditation by Sentia Yoga on Insight Timer called ‘Nine divine days day six the healer’. I have been enjoying this whole series but this one really resonated with me. In it she spoke about the Roman Goddess Feronia and while listening I just felt a lightbulb go off in my head. I have found it stayed with me and since then I have been reflecting with a goddess something I have not really done before. You see this is the Roman Goddess of health and abundance but also of freedom. She granted freedom to slaves and at first I struggled to get…
How I treat my chronic pain
Well I have been meaning to do a post showing how I treat my chronic pain for a while. I hope this post will give you some new ways to cope and treat your pain and I think its important we all share our tips and tricks anything is worth a try. I definitely think we all get to that point at some stage and you never know some of them may help you. How I treat my chronic pain CBD So I use a few versions of CBD this is a great way of treating chronic pain, but it does take trying different types to find what works for…
So summer has finally arrived
So, summer has finally arrived in England and for those of us with chronic illnesses who find it hard to regulate our body temperature it’s not great! Honestly, I cannot step outside to enjoy the sunshine because it is so bright and hot, but our houses are insulated so it’s really hot inside too! Currently I am sat on my sofa in the living room, but yesterday I spent the whole day in bed tired, in pain and with a really bad headache. Today is much the same except my EDS joints are very unstable and painful and I am sat in the living room which is the coolest room…
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Repercussions from Christmas
Feeling happy at Christmas
How can I help my fatigue?
Am I in a flare?
So if you follow me on Instagram you will know that I have had a busy couple of weeks! I went to a weekend convention to meet some of my favourite Once Upon a Time actors, and then the following weekend we went to London to see Billy Joel in concert. I thought I had rested enough and been careful but then this week I have been asking myself…Am I in a flare? While I was at the convention I woke one morning with a lot of pain in my lower back like I had pulled something or trapped something. I have been treating it with heat ever since however…
Blooming Mindfulness award
Oh my goodness I am so excited and thankful that Back Pain blog UK has nominated me for an award that was set up by Pamela Jensen from There is Always Hope. The Chronically Hopeful Award is, in her words, “to recognise the incredible people who blog about chronic illness, mental health and disability.” This meant so much to me because both of these blogs are favourites of mine who I have been subscribed to for years. Both of these incredible people inspire me to keep writing and to strive to bring some light into this world. There are many blogs out there, but I think all three of us can…
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Push for what’s right
So summer has finally arrived
Birthday, bad news and a flare
