Life is like a Tapestry
Hey everybody! Today’s blog post is very much inspired by my friends podcast Hero’s Breath, this podcast is very much opening my mind and I’m very grateful for that. This last week my health has not been great and it has been a struggle, but what I came to realise by listening to this podcast was life is like a tapestry. So often in my life I have been asked how I can have faith in God when there is so much famine, war and pain in the world. How can I love a God that allows people to suffer and animals to be in pain etc, especially by my…
Alternative Marie Kondo method for chronic illness
Hey everybody! Wow I cannot get a hold of my fatigue at the moment, and I think anyone who has the same issue will understand my problem. You see not too long ago a woman gained fame on Netflix for her show about decluttering and she is Marie Kondo! The problem I found was the Marie Kondo method is not really practical when you live with chronic illness and especially chronic fatigue. So, I had to come up with an alternative Marie Kondo method for chronic illness! Chronic fatigue is something that is very hard to deal with because people think it is just feeling tired so they assume if…
Why cinema trips can be hard with chronic illnesses
Hey everybody! I think it is important to look at how disability impacts normal life, and for most people cinema trips are normal. That is why today we are talking about why cinema trips can be hard with chronic illnesses. Avengers Yesterday I went to see Avengers Endgame, and oh my goodness was I excited! I got dressed up as you can see, and we went to the lunchtime showing because we couldn’t wait. However, almost as soon as I came out of seeing the film I was reminded why there are so many films I have to miss. I love going to see a movie, it is one of…
Spring is bringing renewed confidence
Hey everybody! Wow spring has sprung here in the UK finally and it feels lovely to have warm air and sunshine again! I can feel changes in myself and it feels really good because spring is bringing renewed confidence and I am not used to that, it feels pretty good though! If you have been following my blog and my You Tube channel, then you will know I have gone through a lot of changes over the last year or so. I have always tried to walk with God, but I have really found myself open up to true faith that has nothing to do with religion. It has been…
Mobility aids,You Tube awards and Dr Phil
Hey everybody! I am sorry I have not been as reliable with my posting recently, my health was kicking up a fuss and I needed to rest I hope you understand? I was in a flare and I am recovering now but my goodness the house is a mess! You can tell I have not been able to keep up with cleaning and my goodness is it annoying! On top of that this last week has had my attention on strange things like mobility aids,You Tube awards and Dr Phil! So I realised that recently on Instagram, as I scroll my feed, I have been noticing people announcing that they…
Birthday, bad news and a flare
Hey everybody! So I gave myself last Friday off because Saturday was my birthday and as I had gone out for dinner Thursday I needed to rest. I am sure my fellow Spoonies understand and for that I am thankful! This week is starting off with payback for my birthday, bad news and a flare and I am not happy about it! My birthday was pretty chill, I visited my mother and we had some yummy food and cake and watched Bohemian Rhapsody with friends. It was a fun evening and I was thankful Amazon Prime already have it to rent because going to the cinema can be difficult for…
Flaring But Fighting
Hey everybody! If you read my last couple of blog posts, you will know that the lovely people at the DWP decided to take my PIP benefit from me! The stress of losing my PIP benefit has really hit me flaring my pain, fatigue and depression so I’m flaring but fighting! I have been really suffering with pain especially in my shoulders and arms, and that horrible dull ache in the back of my neck is back! That lovely pain is what triggers a migraine after a while so I am really hoping meditating more and trying to keep moving will help. I feel a little like a zombie at…
Dealing with a busy and stressful week
Hey everybody! Wow last week was a bit of a nightmare! It was such a busy and stressful week and that is why I didn’t have a blog post on Friday I was so wiped out and I still am! The week before I got letters saying I have to be reassessed for both of my disability benefits. I hate when they do this and if you are in England and unable to work I am sure you can understand why I was so stressed about it. People who are not specialists and doctors, unlike the specialists and doctors who diagnosed us, sit and ask us questions then someone else…
Inspiration and Routine
Hey everybody! Wow I have had a boring weekend, just filled with routines and very task orientated as I find ways to follow my New Years resolutions. But sometimes inspiration and routine come at the same time, it isn’t something negative as people can assume and just stepping a little out of your comfort zone can make all the difference! I have been working on getting into a good weekly routine that keeps the work I do for my You Tube channel, as well as here as spaced out as possible. This is because with my fatigue where it is at the moment I cannot spend hours and hours on…
Repercussions from Christmas
Hey everybody! Well Christmas is over, the New Years bells have been rung, and I am suffering the repercussions from Christmas! Thing is I cannot blame anyone at all but myself, and that is the annoying part, I did all the things I should not do I know better!! Over Christmas I started rewatching New Girl which is a favourite of mine and I tend to turn to these sort of comfort shows at difficult times. This Christmas was the first since my Grandmother passed away and it didn’t really feel like Christmas! To be honest, it just felt like another day and though I had my decorations up they…
