A new norm to get used to
I think anyone reading this who has chronic illnesses would tell you that after a while you get used to the symptoms. It becomes the norm and before you know it you can no longer remember how it feels to be well. But then something new pops up your head and before you realise it there is a new norm to get used to. This week I had a gastroscopy I had it with sedation because I didn’t want to remember the process, since then I have had nausea and stomach ache. Not that it’s a surprise, but I’m glad I got a chance to have it by the wonderful…
How can I help my fatigue?
How can I help my fatigue? I am sure if you suffer with it you have asked yourself this many times just as I have!
A new daily routine
So, as you know if you are a regular reader of my blog, we got a new dog his name is Dexter and he is a 5year old shih tzu. We have had him a couple of weeks now and he has really settled in well just becoming a part of the family and we love him. However, he is a higher energy dog than Gizmo ever was even as a puppy and I’m trying to work out a new daily routine. Lee is now back at work, so I am with the dogs most of the time on my own they both seem to be battling for my attention…
Reflecting with a goddess
So the other day I was doing a meditation by Sentia Yoga on Insight Timer called ‘Nine divine days day six the healer’. I have been enjoying this whole series but this one really resonated with me. In it she spoke about the Roman Goddess Feronia and while listening I just felt a lightbulb go off in my head. I have found it stayed with me and since then I have been reflecting with a goddess something I have not really done before. You see this is the Roman Goddess of health and abundance but also of freedom. She granted freedom to slaves and at first I struggled to get…
How I treat my chronic pain
Well I have been meaning to do a post showing how I treat my chronic pain for a while. I hope this post will give you some new ways to cope and treat your pain and I think its important we all share our tips and tricks anything is worth a try. I definitely think we all get to that point at some stage and you never know some of them may help you. How I treat my chronic pain CBD So I use a few versions of CBD this is a great way of treating chronic pain, but it does take trying different types to find what works for…
Am I in a flare?
So if you follow me on Instagram you will know that I have had a busy couple of weeks! I went to a weekend convention to meet some of my favourite Once Upon a Time actors, and then the following weekend we went to London to see Billy Joel in concert. I thought I had rested enough and been careful but then this week I have been asking myself…Am I in a flare? While I was at the convention I woke one morning with a lot of pain in my lower back like I had pulled something or trapped something. I have been treating it with heat ever since however…
Tips for travel with chronic illness
I am going away this weekend and I am so excited; I am going to a convention dedicated to the TV show Once upon a time! I have been attending events run by Starfury decades and honestly, I think they are the best. The problem is even though I am going away my fatigue and chronic pain doesn’t take a break. I wanted to share some tips for travel with chronic illness because its important to share what works for us. I cannot remember the last time I had a day without pain, maybe never I mean I remember being in so much pain as a child. But as an…
Feeling overwhelmed and lost
Feeling overwhelmed and lost is something unfortunately I have come used to over the last couple of weeks. My health has not been the best, I’m trying to lower the dose of one of my meds, I got a virus that landed me in A&E….yeah it’s not been fun! Let’s start with the opioid crisis, I’m sure most chronic illness warriors have heard of this and it was just affecting America. However, it would seem that our government have taken a note from there and changed one of my meds to a class C drug. So I had to have a phone call with my GP practice pharmacist to see…
Alternative Marie Kondo method for chronic illness
Hey everybody! Wow I cannot get a hold of my fatigue at the moment, and I think anyone who has the same issue will understand my problem. You see not too long ago a woman gained fame on Netflix for her show about decluttering and she is Marie Kondo! The problem I found was the Marie Kondo method is not really practical when you live with chronic illness and especially chronic fatigue. So, I had to come up with an alternative Marie Kondo method for chronic illness! Chronic fatigue is something that is very hard to deal with because people think it is just feeling tired so they assume if…
Let’s talk about mobility aids
Let’s talk about mobility aids so that’s things like walkers, walking sticks, crutches, wheelchairs of all the various kinds. Anything that helps us get around in the chronic illness community a lot of people use them not all wheelchair users have to be in a wheelchair full time. Not everybody who uses a walking stick needs it all the time and I think is this big gap between what society expects and what is needed. I’ve heard of people getting abused, getting shouted at even violence because of parking in disabled parking bays! So, it’s no wonder that we feel a little bit hesitant to go outside with a walker…
