Am I in a flare?
So if you follow me on Instagram you will know that I have had a busy couple of weeks! I went to a weekend convention to meet some of my favourite Once Upon a Time actors, and then the following weekend we went to London to see Billy Joel in concert. I thought I had rested enough and been careful but then this week I have been asking myself…Am I in a flare? While I was at the convention I woke one morning with a lot of pain in my lower back like I had pulled something or trapped something. I have been treating it with heat ever since however…
Tips for travel with chronic illness
I am going away this weekend and I am so excited; I am going to a convention dedicated to the TV show Once upon a time! I have been attending events run by Starfury decades and honestly, I think they are the best. The problem is even though I am going away my fatigue and chronic pain doesn’t take a break. I wanted to share some tips for travel with chronic illness because its important to share what works for us. I cannot remember the last time I had a day without pain, maybe never I mean I remember being in so much pain as a child. But as an…
Feeling overwhelmed and lost
Feeling overwhelmed and lost is something unfortunately I have come used to over the last couple of weeks. My health has not been the best, I’m trying to lower the dose of one of my meds, I got a virus that landed me in A&E….yeah it’s not been fun! Let’s start with the opioid crisis, I’m sure most chronic illness warriors have heard of this and it was just affecting America. However, it would seem that our government have taken a note from there and changed one of my meds to a class C drug. So I had to have a phone call with my GP practice pharmacist to see…
Alternative Marie Kondo method for chronic illness
Hey everybody! Wow I cannot get a hold of my fatigue at the moment, and I think anyone who has the same issue will understand my problem. You see not too long ago a woman gained fame on Netflix for her show about decluttering and she is Marie Kondo! The problem I found was the Marie Kondo method is not really practical when you live with chronic illness and especially chronic fatigue. So, I had to come up with an alternative Marie Kondo method for chronic illness! Chronic fatigue is something that is very hard to deal with because people think it is just feeling tired so they assume if…
Let’s talk about mobility aids
Let’s talk about mobility aids so that’s things like walkers, walking sticks, crutches, wheelchairs of all the various kinds. Anything that helps us get around in the chronic illness community a lot of people use them not all wheelchair users have to be in a wheelchair full time. Not everybody who uses a walking stick needs it all the time and I think is this big gap between what society expects and what is needed. I’ve heard of people getting abused, getting shouted at even violence because of parking in disabled parking bays! So, it’s no wonder that we feel a little bit hesitant to go outside with a walker…
Spring is bringing renewed confidence
Hey everybody! Wow spring has sprung here in the UK finally and it feels lovely to have warm air and sunshine again! I can feel changes in myself and it feels really good because spring is bringing renewed confidence and I am not used to that, it feels pretty good though! If you have been following my blog and my You Tube channel, then you will know I have gone through a lot of changes over the last year or so. I have always tried to walk with God, but I have really found myself open up to true faith that has nothing to do with religion. It has been…
Mobility aids,You Tube awards and Dr Phil
Hey everybody! I am sorry I have not been as reliable with my posting recently, my health was kicking up a fuss and I needed to rest I hope you understand? I was in a flare and I am recovering now but my goodness the house is a mess! You can tell I have not been able to keep up with cleaning and my goodness is it annoying! On top of that this last week has had my attention on strange things like mobility aids,You Tube awards and Dr Phil! So I realised that recently on Instagram, as I scroll my feed, I have been noticing people announcing that they…
Flaring But Fighting
Hey everybody! If you read my last couple of blog posts, you will know that the lovely people at the DWP decided to take my PIP benefit from me! The stress of losing my PIP benefit has really hit me flaring my pain, fatigue and depression so I’m flaring but fighting! I have been really suffering with pain especially in my shoulders and arms, and that horrible dull ache in the back of my neck is back! That lovely pain is what triggers a migraine after a while so I am really hoping meditating more and trying to keep moving will help. I feel a little like a zombie at…
Fighting fatigue and gaining confidence
Hey everybody! First of all I am very sorry I did not have a blog post out to you on Friday last week I think things caught up with me. I have been fighting fatigue and gaining confidence two things that shouldn’t go together but this week strangely do! As you know I had a bit of a stressful week with going to two disability benefits reassessments in one week! I really feel as if dealing with that has increased my fatigue to a point where I wake up a lot later in the morning than usual, and spend most of the morning, laying in bed looking more zombie than…
Dealing with a busy and stressful week
Hey everybody! Wow last week was a bit of a nightmare! It was such a busy and stressful week and that is why I didn’t have a blog post on Friday I was so wiped out and I still am! The week before I got letters saying I have to be reassessed for both of my disability benefits. I hate when they do this and if you are in England and unable to work I am sure you can understand why I was so stressed about it. People who are not specialists and doctors, unlike the specialists and doctors who diagnosed us, sit and ask us questions then someone else…
