One of those days…
Yes, today is one of those days, you know when everything hurts and you feel like you could nap for about a year quite happily. So instead of heading to bed, I thought we would talk about it. Most of…
ME/CFS frustrations
It is ME awareness day and I am a sufferer of this illness so I wanted to make a post about it and why we need more awareness and more funding. There is so little known about this illness even…
Body positivity when disabled
Body positivity when disabled is not easy, everything in media and in society in general is negative about disability, most of the time we are kind of forgotten. Otherwise we can be made to feel guilty or judged by how…
Health Update
I always find these posts important to write but difficult to write, I am not sure why but here is a health update. I will also be chatting a little about how being a carer has affected me. I have…
Rest is Self Care
I think so many of us, disabled or not, think that rest is wasting time or not being productive enough. I felt the same for a long time, but I have found rethinking it as rest is self care really…
When pacing goes wrong
I think we have all had times when pacing goes wrong and end up doing so much more than you meant. It is part of living with chronic illnesses that cause fatigue, and so is the guilt! So I thought…
Disabled community stop doing this in 2021
I think I can safely say you are not alone in doing these things, I am as guilty of it as you are. But disabled community stop doing this in 2021 please? Can we move forward with a collective agreement…
Getting back to exercise
Exercise has been important to me for many years now and for a long time I did yoga every day. Looking after my joints and muscles helps my pain and protects my hypermobile joints. But with increased fatigue, and moving…
When fatigue flares
Moving house is always stressful and difficult, even if you don’t have chronic illnesses it can take it’s toll. When fatigue flares it can leave you feeling frustrated and annoyed, or trying to push through so you can get things…
Finding a rhythm
As you know, if you have been following recent blog posts and you tube videos, I have moved with my husband to be a carer for my mother. This obviously caused a lot of worry, stress and change to my…
