F is for Fatigue
When I was a child I loved Sesame Street, and at the moment I cannot stop thinking that F is for Fatigue would definitely be one of my words of the day. It feels so overwhelming and I am struggling…
The worst flare in a while
I am currently experiencing the worst flare in a while of my chronic illnesses and I am really struggling, so lets talk about how it happened and why its a lesson to learn from. I often talk about my chronic…
Invisible Disabilities Week 2021
It is Invisible Disabilities Week 2021 and as an advocate, carer, and person with invisible illnesses I wanted to talk a bit about my own experiences. I hope this article helps you to feel a little less alone. I am…
Dealing with Painsomnia
After spending a night in pain and awake I thought we should have a chat about dealing with painsomnia, something those of us with chronic illnesses know a lot about. Last night I went to sleep at about 11pm, and…
Pain awareness month
Pain awareness month is an important time of the year for advocates, we can take the opportunity to raise awareness for the fact that chronic pain is not like acute pain. There are so many different definitions, and statistics and…
Working through frustration
Working through frustration has become something I am used to, something I battle with every day. Chronic fatigue holds me back from so much, recording my YouTube videos, even writing this blog so I thought we should chat about it.…
Taking some me time
I think we all live with guilt when we take a day for ourselves, it’s ingrained in our society to always be working and grafting even if we are sick. But taking some me time is so important for our…
How my mobility aids help my pain
Many people in this world use mobility aids, but today I want to talk about how my mobility aids help my pain. Now if you don’t use them this might seem strange, but bear with me and everything will become…
One of those days…
Yes, today is one of those days, you know when everything hurts and you feel like you could nap for about a year quite happily. So instead of heading to bed, I thought we would talk about it. Most of…
ME/CFS frustrations
It is ME awareness day and I am a sufferer of this illness so I wanted to make a post about it and why we need more awareness and more funding. There is so little known about this illness even…
