Disability Pride Isn’t About Loving Your Disability
Disability Pride Isn’t About Loving Your Disability; it’s about finding ways to live your best life despite symptoms and abilities that make it harder. Taking steps to make life possible, coping with the ups and downs of life, and not…
You Are Worthy of Love
I think so many people struggle to believe that you are worthy of love when you are disabled, and much of this comes from the messages we absorb as we are growing up in this society. We worry that needing…
Finding Small Joys on Difficult Days
I used to measure my good days by how much I got done; I pressured myself to pushing against my symptoms to ‘achieve’ and it became exhausting. I have since learned that peace, comfort and rest are so meaningful, and…
What a “Good Day” Really Means With Chronic Illness
As someone who has lived with chronic illnesses for over twenty years, I know that ‘good days’ often come with people assuming I am well. People saying I am looking better, or I seem well today do nothing but show…
Chronic Illness, Identity & Letting Go
There has been a lot of change in my life, I guess that’s why using the name Beverley Butterfly makes sense! But right now, as I step into menopause, and look back to see how chronic illness, identity and letting…
Low-Energy Living: A Gentle Routine for Flare Days
This morning, I woke up tired, my body aching and brain fog making the world seem confusing and words hard to find. I need to write this blog post, and yet when my body is struggling it always feels as…
Pacing Yourself in Late Winter When You’re Chronically Ill
By February, the sparkle of January has worn off. The days are still short, the light still thin, and my body feels the weight of it all. Late winter always feels hard with the grey, raining weather being so draining…
Rejecting New Years Pressure
Happy New Year dear readers, and welcome back to the blog! As we step into 2026, I wanted to talk about how important it is to let go of negativity about who you are or were in the year before.…
Managing Stress as a Disabled Carer
It is International Stress Awareness Week and though this year’s theme is about optimising employee wellbeing I am going to talk about something different. I cannot work, as I am disabled, but almost six years ago me and my husband…
Living Beyond the Visible: My Life with Invisible Disabilities
It is Invisible Disabilities Week and so it is the perfect time to share My Life with Invisible Disabilities. I have lived with invisible illnesses for over twenty years and over that time I have experienced so much, let’s get…
