Frustrated with fatigue
I have not done a post like this for a while I don’t think, most of the time I try to use my life as a teaching moment here…but I’m just frustrated with fatigue! Looking back, I think I always…
Learning to rest
Knowing that my body is struggling, doesn’t mean that I find it easy to slow down, no I’m still learning to rest!! I spoke last week about how my health is doing right now, and no it isn’t good to…
Good and bad days with chronic illness
The difference between good and bad days with chronic illness can be almost unrecognisable, and yet most people only see us on good days. So lets chat about it. I think most people know someone with chronic illnesses, whether we…
Items that help me live with chronic illness
Shockingly I have never spoken about the items that help me live with chronic illness, but it’s important to share what gets us through the day. So, my life is lived I refuse to just survive or push myself through…
The fear of chronic illness flares
As I lay here in bed, in the middle of a massive flare, I thought we would chat about the fear of chronic illness flares. I have spoken here a few times about my chronic illness journey, I thought I…
All my illnesses awareness month
May is a big month in the raising awareness stakes and for me it is all my illnesses awareness month! So, I thought I would do one big post with lots of information! Lets do this: My illnesses, Ehlers Danlos…
Find space to breathe
I have been making changes in my life, trying to find space to breathe and feel happier and healthier its a process!! Change is never easy, years ago my routines were healthy and I felt better in myself I did…
the continual acceptance of chronic illness
Things have changed for me recently, and it has been difficult for me to accept, so today lets have a chat about the continual acceptance of chronic illness. I have had chronic illnesses all my life, but they really started…
National bed month 2023
It is National bed month 2023 and as someone with several chronic illnesses that have the symptom of fatigue, it means a lot to me! So lets chat about getting better sleep. Since 1990, March has been dedicated by the…
Finding traditions and holidays
Many of us struggle with finding traditions and holidays that work for us, for many reasons, it’s something I have struggled with. Today we are going to talk through ways of doing this. I have spoken many times here on…
