Birthday, bad news and a flare
Hey everybody! So I gave myself last Friday off because Saturday was my birthday and as I had gone out for dinner Thursday I needed to rest. I am sure my fellow Spoonies understand and for that I am thankful! This week is starting off with payback for my birthday, bad news and a flare and I am not happy about it! My birthday was pretty chill, I visited my mother and we had some yummy food and cake and watched Bohemian Rhapsody with friends. It was a fun evening and I was thankful Amazon Prime already have it to rent because going to the cinema can be difficult for…
Frustration with Fatigue
Hey everybody! So like I mentioned earlier this week, my fatigue has kicked things up a notch and I am really hoping this is just a flare to do with the anaemia I have been put on iron tablets for. This week has been full of frustration with fatigue stopping me doing most things I want to do and when I push through it pushes back! I have started trying to do my physiotherapy exercises every other day, she told me to do them like that so they didn’t make me too tired. Then on the day I do not do that I thought I could do a little cleaning…which…
Dealing with a busy and stressful week
Hey everybody! Wow last week was a bit of a nightmare! It was such a busy and stressful week and that is why I didn’t have a blog post on Friday I was so wiped out and I still am! The week before I got letters saying I have to be reassessed for both of my disability benefits. I hate when they do this and if you are in England and unable to work I am sure you can understand why I was so stressed about it. People who are not specialists and doctors, unlike the specialists and doctors who diagnosed us, sit and ask us questions then someone else…
Repercussions from Christmas
Hey everybody! Well Christmas is over, the New Years bells have been rung, and I am suffering the repercussions from Christmas! Thing is I cannot blame anyone at all but myself, and that is the annoying part, I did all the things I should not do I know better!! Over Christmas I started rewatching New Girl which is a favourite of mine and I tend to turn to these sort of comfort shows at difficult times. This Christmas was the first since my Grandmother passed away and it didn’t really feel like Christmas! To be honest, it just felt like another day and though I had my decorations up they…
Looking ahead at the end of the year
Hey everybody, Sometimes it takes opening up to make things happen as you start looking ahead at the end of the year. I have been working hard to try not to be a people pleaser anymore but after being one for so long it is kind of hard to just change you know? However, though I have been working hard to learn to be a psychicover the last two years, it never felt right to me and I was scared to tell my teacher the lovely Linda, in case I upset her or let her down. But I really do not enjoy talking about and to people who have passed on. I…
Ups and downs
Hey everybody! Well December has arrived, and we are all reflecting back on the year, while either dreading or getting excited for Christmas. As we look back we realise we all have times where we struggle but it is rarely all one way or the other, life is just full of ups and downs. Over the last few days I have been thinking back, and a good way of doing this I realised was to look at my vision board. I have never made one before, but I recently read a book called Moonology where the author teaches you about how to work with the moon and part of it…
Looking back as I look forward
Hey everybody! First of all I owe you an apology last week was a bit crazy and instead of pushing out a not so good post I thought I would look after myself and have a week off. However, here you are so maybe I should explain that I have been going through a lot of self-discovery recently and because of this I find myself looking back as I look forward. Last Friday was so exciting I went to the Mind Body and Spirit festival which was held at the NEC in Birmingham. It is not too far from me and I was lucky enough that one of my friends Josh…
When a pain flare is overwhelming
Hey everybody! My pain is flaring at the moment and I will be honest it is kind of worrying and overwhelming! I am trying to keep my chin up and keep going, I think sometimes pain and fatigue can stop us in our tracks then we find our ways of coping; So when we flare it can be difficult to find our feet again because we are already running at a much lower pace than most people could cope with! What is a flare? A flare is when your symptoms get worse but it is because of something you know and you are sure it will get better, for…
Resting leads to guilt
Hey everybody! Well I have been put on antibiotics this week, hence no post on Monday just gone, and I feel awful on them! I am literally sleeping most of the time and to be honest resting leads to guilt, and I have written about this before but the struggle is real! My husband is not feeling too well right now either so I want to be looking after him, instead I am staying in bed all morning, needing baths to help my pain, and not managing to do my physiotherapy or yoga or any housework! I am literally a lump on the sofa and it is not a nice…
Looking back some diagnosis just make sense
Hey everybody! So if you have been reading my blog for a while, you will know that I was diagnosed with two illnesses Ehlers Danlos Syndrome (EDS) and ankylosing spondylitis. Looking back some diagnosis just make sense and for me that is EDS, when I started to research it all just seemed to fall into place. See back when I was a kid I had a lot of problems with my legs, they were constantly painful and the one time I saw a doctor I was told it was just ‘growing pains’. However, the fact that I was late at walking, and that my legs were so stiff that I couldn’t…
