There are a lot of things I am not good at, including riding a bike, but the main one is remembering dates, birthdays etc. I really suck at it, still it was impossible to escape my notice this month that it is all my illnesses awareness month! Ok not ALL of my illnesses, but three of them the ones I think of as being my main three. Ehlers Danlos Syndrome, Myalgic Encephalomyelitis (ME) and Fibromyalgia have all affected my life…
Hey Everybody! Wow this last week has been so lovely here in the UK the sun has been shining its been glorious! And that seems to have influenced me because this week seems to have been filled with smiles and good news its been a lovely breath of fresh air! My chronic illnesses and mental health do make it hard to maintain a good mood, however I have been working on this. The spiritual journey I am on has shown…
Hey everybody! So I gave myself last Friday off because Saturday was my birthday and as I had gone out for dinner Thursday I needed to rest. I am sure my fellow Spoonies understand and for that I am thankful! This week is starting off with payback for my birthday, bad news and a flare and I am not happy about it! My birthday was pretty chill, I visited my mother and we had some yummy food and cake and…
Hey everybody! So like I mentioned earlier this week, my fatigue has kicked things up a notch and I am really hoping this is just a flare to do with the anaemia I have been put on iron tablets for. This week has been full of frustration with fatigue stopping me doing most things I want to do and when I push through it pushes back! I have started trying to do my physiotherapy exercises every other day, she told…
Hey everybody! Wow last week was a bit of a nightmare! It was such a busy and stressful week and that is why I didn’t have a blog post on Friday I was so wiped out and I still am! The week before I got letters saying I have to be reassessed for both of my disability benefits. I hate when they do this and if you are in England and unable to work I am sure you can understand…
Hey everybody! Well Christmas is over, the New Years bells have been rung, and I am suffering the repercussions from Christmas! Thing is I cannot blame anyone at all but myself, and that is the annoying part, I did all the things I should not do I know better!! Over Christmas I started rewatching New Girl which is a favourite of mine and I tend to turn to these sort of comfort shows at difficult times. This Christmas was the…
Hey everybody, Sometimes it takes opening up to make things happen as you start looking ahead at the end of the year. I have been working hard to try not to be a people pleaser anymore but after being one for so long it is kind of hard to just change you know? However, though I have been working hard to learn to be a psychicover the last two years, it never felt right to me and I was scared to…
Hey everybody! Well December has arrived, and we are all reflecting back on the year, while either dreading or getting excited for Christmas. As we look back we realise we all have times where we struggle but it is rarely all one way or the other, life is just full of ups and downs. Over the last few days I have been thinking back, and a good way of doing this I realised was to look at my vision board….
Hey everybody! First of all I owe you an apology last week was a bit crazy and instead of pushing out a not so good post I thought I would look after myself and have a week off. However, here you are so maybe I should explain that I have been going through a lot of self-discovery recently and because of this I find myself looking back as I look forward. Last Friday was so exciting I went to the…
Hey everybody! My pain is flaring at the moment and I will be honest it is kind of worrying and overwhelming! I am trying to keep my chin up and keep going, I think sometimes pain and fatigue can stop us in our tracks then we find our ways of coping; So when we flare it can be difficult to find our feet again because we are already running at a much lower pace than most people could cope with!…