Trying to live with Chronic Illness

shopping

Christmas gift guide for spoonies

Photo by Thought Catalog on Unsplash

Photo by Thought Catalog on Unsplash
[IMG] Picture shows a christmas tree from above with presents around the bottom, and one side on the floor is christmas lights and you can see someone’s feet wearing red socks. Name of the blog is written above and below is the title of the post

Hey there butterflies!

It can be so hard for the disabled, or housebound people to find nice presents to buy this time of year without facing the crowds. I have decided to put together a gift guide of small online shops that I think are great for finding nice presents and I actually shop there too!

None of these are sponsored in any way but I will state if anything was sent to me for free or anything as I go ok?

Chockabilly: This site is where I got a few accessories this summer which were in a you tube video I love this site they have cute hairclips, pins and handbags as well as real vintage and reproduction clothing. If you have a vintage gal in your life you will want to check out what they have!

Earthlight Crystals: This shop has a wonderful site with beautiful candle holders, crystals and homemade candles. They are on Etsy as well and both shops have some beautiful and unique pieces that would really make somebody’s christmas!

Urban Lune: This site is a gem, their candles are so unique and smell divine I cannot wait to give them out to my family this christmas! They also sell crystals, witchy essentials and tarot cards so you will certainly find something for everyone.

Cocoa and Heart: I was sent one of their gift boxes to review and you can see this video below, their chocolate is so delicious and I am definitely going to be getting some boxes for family! If you want to buy from them you can use the code XMAS18 for 10% off your order until January 31st 2019!

Grizzly Supplies: This shop is amazing it is all hand made real wood shelving for ornaments and especially crystals. I have had one for one of my christmas presents from my husband and omg I cannot wait to have it up and adorned with my favourite pieces! They have so many designs available you will be sure to find something special for someone special.

Pretty Old Jewels Co: If you are looking for one of a kind, vintage jewellery this is the place to go! They have so much choice and all hand picked so you or your loved ones can look fabulous at christmas!

Unbroken Smile: They do apparel for anyone wanting to support or raise awareness for chronic illness I love their designs and how inclusive they are. I always wanted something from there so if you are wondering go look I am sure you will find something wonderful.

Art tales and Magic: The art in this shop is dark and full of magic and fantasy I love the owners who are fellow you tubers and his art speaks for itself!

Mighty Moon: Last but not least, this shop has some beautiful and unique pieces that are all hand made and the girl who runs it is so lovely to chat to I would definitely recommend!

So there you have it, my favourite unique shops online to buy original designs that will leave you wondering what to give as a gift and what to keep for yourself! I hope you enjoyed this gift guide and will let me know if you buy any presents from these shops

Namaste xxx

Let’s talk about materialism

Today I talk about materialism and how I am trying to stop turning to things for happiness Hey Everybody!

So I think I mentioned this in previous posts, but I was an only child and because I had no siblings I was kind of spoilt. If I wanted something either my parents or my grandparents would make it happen. I was always grateful for this, as a child you have no idea about money or it’s worth and getting presents make you feel happy.

However, as an adult suffering with depression I found myself turning to shops to make me happy. Because of this I have accumulated a lot of things that I do not need, I have spoken before about my DVD collection! There was a time that I loved seeing my things all around me, but over the last year I have come to realise that I do not ‘need’ most of it.

I think it was discovering about tiny homes on You Tube that helped me realise that materialism meant I was outgrowing my home and it was more than enough room for me and my husband. The decision to ‘spring clean’ my life was one that came surprisingly easily and I am thankful for going through with it, though it gave me anxiety.

Over the last couple of years I have been studying Buddhism, and it is important in that philosophy not to hold onto material goods. This can be difficult to put into practice, however I realised that buying new things did not ever help my depression. in fact there were times when it was made worse because I spent too much or regretted what I had bought.

Depression often makes us feel like we are not worth much, and TV ads, movies and celebrities often like to sell us the idea that buying things will make us worth more. However, I have found since starting to move away from this sort of thinking that it feels good to not buy things because of what others tell us we need. I know those shiny new shoes, or purse that celebrities have look good, but do you really need more than one?

It can be tempting to jump into cleaning your house out, I would love to sweep through my house and get rid of the things that no longer serve me, however I suffer with fatigue and I have to be careful. Because of this I chose to concentrate on one room at a time, I started with the room that has all my books, DVDs and collectables.

I decided to go through my things over a few weeks a little at a time, it is important to know your limits and not push yourself too far. I actually took the whole day to sort the room, and I took a nap half way through the day and I made sure I drank a lot of water. I also used my slow cooker to make sure that I ate well and not give in because I was tired and order take out!

I also would stay away from window shopping, I accumulated quite a long wish list on Amazon, but it was just temptation I did not need. Always remember, material goods might feel good in the moment, but they do not measure up to self-worth, you need to be your own best friend and treat yourself to more than just the latest gadget!

Namaste xxx

Learning to have pride in my achievements

After a shopping trip I realised how far I have come and talk about looking back on things positively Hey everybody!

So I am English and I feel as if we are as a society taught that feeling good about yourself and having pride in the things you do is a bad thing. English people love to moan and be negative about everything it is just in our nature and something that I always bought into! Negative thinking was how I communicated with myself and I had a very low opinion of myself because of it.

When I started to study Buddhism and started to realise that I cannot have good energy if I am always negative, I started to work hard to change my thinking. Counselling helped, but it really came from me to do the work of learning to think differently. It took a few years to achieve it, and yes I sometimes fall into old patterns, but now instead of looking back on my day and thinking of all the bad and wrong things I did, I try to think of the good things.

Now yesterday me and my husband along with my dad and his girlfriend went for the day to a large shopping center about an hour from where I live. We tend to go every 6 months or so and I have to be honest in the past I would let Lee talk for me, and I would spend a fortune on junk!

However, this year I am working hard on not being materialistic and on cutting down on the things in my home that do not serve me. So I did not come home with a million bags of stuff and feel good for half an hour, instead I bought a couple of make up products, a t shirt and some Lush bath products because baths really help my pain. I avoided shops like Primark where I tend to buy a lot of clothes I do not need and instead just enjoyed a lovely day out!

The first shop we went into was Debenhams because I heard they now stock Kat Von D products…but they are not getting them there for another couple of months! Instead I went to the Urban Decay stand to have a look because I love their pallets and though they are out of my price range I wanted a dream! However, I soon got chatting to the woman there who told me one of the pallets was on offer if I bought it and a lipstick I saved money and got a free gift.

Now the fact that I bought the offer, and tried on some lipstick there is not the point…the point is that 2years ago I could not even speak to someone I did not know! I would ignore people if they spoke to me or I would have a major panic attack, it was not until I had bought these things and come away did I realise how far I had come! I did all the talking, Lee just pushed me in the wheelchair, I did not panic and I chatted to her without even thinking about it.

I also managed to go into the shop Claire’s accessories, which for wheelchair users is impossible to navigate because all the stands are so close together. Lee stood outside with my chair and I went into the shop on my own, picked out what I wanted and paid all by myself! I was beaming when I came out and even now I feel so proud of myself for being able to do this.

Anxiety is overwhelming and I have it all the time about everything, the world to me is a big overwhelming and terrifying place! However, I am starting to learn to break the surface and do things like this for myself.  Never give up, set goals that you can achieve that are small and work up to the big stuff and above all remember every small step is a big achievement if you suffer with chronic illness!

Namaste xxx

Exciting weekend!

billyjoel Hi guys!

Wow I had a busy weekend, it started Friday when me, Lee, my dad and his girlfriend Linda went to a shopping center here called Merry Hill…I call it Merry Hell but I am slightly strange lol! I managed to get some Funko pops, and a statue of one of my favourite actors roles from a video game he was in, and some make up brushes from the Body Shop. It was just a really nice day and I really enjoyed myself out with Lee mainly and we just met up with Linda and Dad for lunch.

I was exhausted when we got home and basically after a make up tutorial with Linda and a cup of tea I went to bed. It was a fun day but I didn’t want to get too tired because the next day we headed to Wembley Stadium in London on a coach to see Billy Joel!

Me and Lee are big fans of him and when we met online it was one of the things that we bonded over, and because of that Billy and his music is special to us.

Because both me and Lee struggle with fatigue and I get a lot of pain we had planned to go down for a few days, but plans changed and I won’t go into why but it was not our choice. The coach journey down to London took about 4 hours, no stops I just tried to sleep through it, but I was in pain and so tired I think if I hadn’t had sugar in the form of Krispy Kreme doughnuts and the adrenaline of seeing Billy we would not have made it through!

Billy was amazing live and the best I had seen him, I will do a full review of it tomorrow, but for now I just want to discuss my health and how it affected me. We did not get home until about 4am and it is now Tuesday and I am still in pain and so so tired! I never would have decided to do this in this way, because of my pain and my illness as well as the fact that Wembley had hardly any vegetarian choices! I am sorry but the venue considering it is Wembley looks like a prison inside and is horrible! The food there is pure junk and not nice at all, the veggie burger I managed to find was so hard to eat…basically no sleep, lots of travel and no food? It ruined what was an incredible concert but I shall talk about that tomorrow!

Right now I need to make dinner and take more meds…my life is ruled by tablets lol

Namaste xxx

Shopping and chill

couch-potato-660x439 I actually went out of the house today, I went to the vets this morning with hubby and our dog who recently had an operation. Thankfully he is healing now and will hopefully be all better soon. Then we needed to get a few things from the supermarket so we headed there and we left doggy in the car with my dad.

Now for most people a supermarket is stressful and something to get out the way, but for me it is magnified so much because of my anxiety then add on to that the excitement that I can look around and get a couple of treats (Zootopia and Deadpool on DVD)! By the time we got home and had a cuppa I was in pain my legs were feeling so tired and sore, then I did a few things online and now I feel like lying on the sofa with dog and watching my new DVDs is a good idea!

I do struggle with walking very far, I use a walking stick for balance, but even with that I get tired very quickly going not very far for most people. The supermarket is always a nice treat and ours is not that big but I am feeling it now! I am counting down the time until I can take my next lot of meds and I cannot wait for bed!

Hello

Hi there I am Beverley, I am trying to find a way to live with Fibromyalgia, Chronic Fatigue, Ehlers Danlos Syndrome, ankylosing spondylitis, Depression and General Anxiety Disorder. I live with my Husband Lee and our dog Gizmo and our budgies Rey and Finn. I live in England and I am learning to be a psychic and I am on a spiritual journey I am excited to share with you. I look forward to getting to know you better, I will be updating Mondays and Fridays xx

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