Organisation and chronic illness
Today I want to talk about organisation and chronic illness, something that has saved me so many flares even this past week so let’s get into it! If you are anything like me, you have probably watched TV shows like…
Finding traditions and holidays
Many of us struggle with finding traditions and holidays that work for us, for many reasons, it’s something I have struggled with. Today we are going to talk through ways of doing this. I have spoken many times here on…
The importance of rest
When dealing with chronic illnesses, the importance of rest cannot be overlooked, it goes against society yet is needed. Let’s talk about it. In our society, which is very much based on money, how much you have and how much…
When medical test results come back normal
It might not make much sense to most people, but when medical test results come back normal, it’s not always a time to celebrate. Let me explain. I recently had a barium swallow, a medical test because I have the…
Invisible Disabilities Week 2022
It’s invisible disabilities week 2022 and as always, I want to shine a light on how mine affect my life and those around me so let’s chat. I first got sick in university, headaches constantly making me miss work and…
Living with chronic pain – pain awareness month 2022
Living with chronic pain is something I’ve spoken about a lot here on the blog over the years, and it is pain awareness month so let’s get into it. Everyone has at some point felt pain, whether it is from…
I had a barium swallow
This week I had a barium swallow at the hospital, I was really nervous before it so I thought I’d share my experience. So, over the last couple of months, I have been struggling with problems with my throat, in…
How my illnesses affect my life
This month is Disability Pride Month, so I thought I would shine a light on how my illnesses affect my life. Ehlers Danlos Syndrome This is a connective tissue disorder that affects how stable my joints are, for me personally…
My Illnesses really slow me down
There are times when my illnesses really slow me down and when I say it is frustrating that is a HUGE understatement! So, let’s have a chat about it. I have a YouTube channel and on it I do videos…
Frustrated with illness and GPs
Do you ever feel completely frustrated with illness and GPs and the ways that health professionals and government agencies react to it? If so, this is the blog post for you! I am diagnosed with a few overlapping illnesses that…
