Living Beyond the Visible: My Life with Invisible Disabilities
It is Invisible Disabilities Week and so it is the perfect time to share My Life with Invisible Disabilities. I have lived with invisible illnesses for over twenty years and over that time I have experienced so much, let’s get…
May awareness days are overwhelming
May is a busy month as far as awareness days are concerned, and for me May awareness days are overwhelming. I have several chronic illnesses and all of the connected days to raise understanding about them have been chosen to…
The fear of chronic illness flares
As I lay here in bed, in the middle of a massive flare, I thought we would chat about the fear of chronic illness flares. I have spoken here a few times about my chronic illness journey, I thought I…
All my illnesses awareness month
May is a big month in the raising awareness stakes and for me it is all my illnesses awareness month! So, I thought I would do one big post with lots of information! Lets do this: My illnesses, Ehlers Danlos…
looking ahead to 2023
A new year is knocking on the door, and if you are like me, I am sure you are looking ahead to 2023, so let’s chat about my plans for the year. As a new year comes into view, I…
Living with chronic pain – pain awareness month 2022
Living with chronic pain is something I’ve spoken about a lot here on the blog over the years, and it is pain awareness month so let’s get into it. Everyone has at some point felt pain, whether it is from…
How my illnesses affect my life
This month is Disability Pride Month, so I thought I would shine a light on how my illnesses affect my life. Ehlers Danlos Syndrome This is a connective tissue disorder that affects how stable my joints are, for me personally…
Frustrated with illness and GPs
Do you ever feel completely frustrated with illness and GPs and the ways that health professionals and government agencies react to it? If so, this is the blog post for you! I am diagnosed with a few overlapping illnesses that…
Recovering from a holiday
Recovering from a holiday can be hard, I know for me it is the thing that I dread the most and why I rarely go. But we all need a break now and then, so let’s talk about it. I…
Awareness months matter
Today my best friend made me cry, she sent me a BBC news article about chronic pain and how sufferers are treated. It reminded me why raising awareness means so much to me and why awareness months matter. I felt…
