How my illnesses affect my life
This month is Disability Pride Month, so I thought I would shine a light on how my illnesses affect my life. Ehlers Danlos Syndrome This is a connective tissue disorder that affects how stable my joints are, for me personally…
Frustrated with illness and GPs
Do you ever feel completely frustrated with illness and GPs and the ways that health professionals and government agencies react to it? If so, this is the blog post for you! I am diagnosed with a few overlapping illnesses that…
Recovering from a holiday
Recovering from a holiday can be hard, I know for me it is the thing that I dread the most and why I rarely go. But we all need a break now and then, so let’s talk about it. I…
Awareness months matter
Today my best friend made me cry, she sent me a BBC news article about chronic pain and how sufferers are treated. It reminded me why raising awareness means so much to me and why awareness months matter. I felt…
Frustrated with the system
So in advance I must apologise, due to me feeling so frustrated with the system this article is going to be more of me venting than my usual helpful posts. I hope you can forgive me this once, and maybe…
Invisible Disabilities Week 2021
It is Invisible Disabilities Week 2021 and as an advocate, carer, and person with invisible illnesses I wanted to talk a bit about my own experiences. I hope this article helps you to feel a little less alone. I am…
How balance affects confidence
I think it is so important to chat to you about how balance affects confidence, I have seen it in myself and my mom who has Multiple Sclerosis. Not knowing when you are going to fall leaves you with a…
Pain awareness month
Pain awareness month is an important time of the year for advocates, we can take the opportunity to raise awareness for the fact that chronic pain is not like acute pain. There are so many different definitions, and statistics and…
One of those days…
Yes, today is one of those days, you know when everything hurts and you feel like you could nap for about a year quite happily. So instead of heading to bed, I thought we would talk about it. Most of…
Its Ehlers-Danlos Awareness Month
Yes it is that time of the year again when all of my illnesses have their awareness month! This year I thought I would concentrate on one illness a week or I might get overwhelmed. So this week its Ehlers-Danlos…
