How my illnesses affect my life
This month is Disability Pride Month, so I thought I would shine a light on how my illnesses affect my life. Ehlers Danlos Syndrome This is a connective tissue disorder that affects how stable my joints are, for me personally…
My Illnesses really slow me down
There are times when my illnesses really slow me down and when I say it is frustrating that is a HUGE understatement! So, let’s have a chat about it. I have a YouTube channel and on it I do videos…
Frustrated with illness and GPs
Do you ever feel completely frustrated with illness and GPs and the ways that health professionals and government agencies react to it? If so, this is the blog post for you! I am diagnosed with a few overlapping illnesses that…
Recovering from a holiday
Recovering from a holiday can be hard, I know for me it is the thing that I dread the most and why I rarely go. But we all need a break now and then, so let’s talk about it. I…
Awareness months matter
Today my best friend made me cry, she sent me a BBC news article about chronic pain and how sufferers are treated. It reminded me why raising awareness means so much to me and why awareness months matter. I felt…
Updated Rollz Motion Review
I had a message on Instagram from Rollz asking me if I would be able to do an updated Rollz Motion review, and I of course said yes. This is a wonderful little mobility aid that packs a punch and…
Frustrated with the system
So in advance I must apologise, due to me feeling so frustrated with the system this article is going to be more of me venting than my usual helpful posts. I hope you can forgive me this once, and maybe…
Invisible Disabilities Week 2021
It is Invisible Disabilities Week 2021 and as an advocate, carer, and person with invisible illnesses I wanted to talk a bit about my own experiences. I hope this article helps you to feel a little less alone. I am…
Pain awareness month
Pain awareness month is an important time of the year for advocates, we can take the opportunity to raise awareness for the fact that chronic pain is not like acute pain. There are so many different definitions, and statistics and…
Taking some me time
I think we all live with guilt when we take a day for ourselves, it’s ingrained in our society to always be working and grafting even if we are sick. But taking some me time is so important for our…
