Invisible Disabilities Week 2021
It is Invisible Disabilities Week 2021 and as an advocate, carer, and person with invisible illnesses I wanted to talk a bit about my own experiences. I hope this article helps you to feel a little less alone. I am…
Pain awareness month
Pain awareness month is an important time of the year for advocates, we can take the opportunity to raise awareness for the fact that chronic pain is not like acute pain. There are so many different definitions, and statistics and…
Taking some me time
I think we all live with guilt when we take a day for ourselves, it’s ingrained in our society to always be working and grafting even if we are sick. But taking some me time is so important for our…
One of those days…
Yes, today is one of those days, you know when everything hurts and you feel like you could nap for about a year quite happily. So instead of heading to bed, I thought we would talk about it. Most of…
My illnesses awareness month
There are a lot of things I am not good at, including riding a bike, but the main one is remembering dates, birthdays etc. I really suck at it, still it was impossible to escape my notice this month that…
Smiles and good news
Hey Everybody! Wow this last week has been so lovely here in the UK the sun has been shining its been glorious! And that seems to have influenced me because this week seems to have been filled with smiles and…
Birthday, bad news and a flare
Hey everybody! So I gave myself last Friday off because Saturday was my birthday and as I had gone out for dinner Thursday I needed to rest. I am sure my fellow Spoonies understand and for that I am thankful!…
Frustration with Fatigue
Hey everybody! So like I mentioned earlier this week, my fatigue has kicked things up a notch and I am really hoping this is just a flare to do with the anaemia I have been put on iron tablets for.…
Dealing with a busy and stressful week
Hey everybody! Wow last week was a bit of a nightmare! It was such a busy and stressful week and that is why I didn’t have a blog post on Friday I was so wiped out and I still am!…
Repercussions from Christmas
Hey everybody! Well Christmas is over, the New Years bells have been rung, and I am suffering the repercussions from Christmas! Thing is I cannot blame anyone at all but myself, and that is the annoying part, I did all…
