Turning to Alternative Therapies
Hey everybody! I was a qualified nurse before I got sick, but even I have to admit modern medicine has kind of let me down! I am constantly told I am on so much pain relief they do not know what to give me if it gets worse. On top of that I was not diagnosed with anything for five years, and then ten years after that I was told I didn’t have Multiple Sclerosis and it was Fibromyalgia instead! So I have been looking into alternative therapies this year and to be honest it is…well overwhelming! It is almost impossible to know where to start and there is so…
How Buffy helped my Chronic Illnesses
Hey everybody! So it is 20years since Buffy the Vampire Slayer first aired, this is my favourite show of all time for so so so many reasons but most of them I will tell you about today! I remember I did not know about Buffy until the second episode, my best friend at the time told me about it and I immediately added it to my list of shows and became addicted. I bought all the episodes on video, I had videos of interviews with the cast and would buy the magazine every week! It was my obsession and the greatest show I had ever seen…and is yet to be…
Social anxiety and appointments alone
Hey everybody! So I do not drive, and my husband has epilepsy so if he has had a seizure within the last year he cannot drive either. Thankfully, I do not leave the house very often and we have a great support system of family and close friends who take us to hospital and doctor appointments. Now I have always had social anxiety when I was a child my parents and the people around me just said I was shy and sensitive. I was often forced to do things at school that would make me physically sick like talk in front of the class and even going to a class alone…
Physiotherapy Update
Hey everybody! So first of all I have actually been referred three times to physio, first time for my shoulder they injected it and said they would call with an appointment and I never heard back. Second time was for neck and upper back pain and I wanted some exercises or something to help ease them, and I heard nothing. Third time was for my thumb and I heard nothing so we called the doctor who referred me and they said they should have given me a number to call but the doctor must have forgotten! Thanks for the pain I had in that time while I waited! I explained…
Making spoonie lists
Hey everybody! So this week my body is trying to kill me plus I am listening non-stop to Ed Sheeran so be thankful I am here and let’s just get into it shall we? So the other day I was in the shower, it was not the best of days so I was listing in my head the things I needed to do…wash my face, shampoo my hair, wash my body…then I realised what I was doing and I wondered if any other Spoonies out there do the same thing? Since the shower I realised that I don’t just work out my spoons (The Spoon Theory) for the week, or…
Birthday Month Self Love
Hey everybody! So on the 16th of this month it is my birthday, and as I thought about the things I wanted out of the year ahead the main one was to look after myself better and to be kinder to myself. These are both things that I struggle with, I think most people do but I want to talk about how we all need to change this! So when I was at school I had problems with eating, I often skipped meals or did not eat at all, this continued into my university years and I got very thin…the thinner I got the more compliments I got and so…
Getting Motivated with Fatigue
Hey everybody! I am someone who finds it easy to be organised and to motivate myself, I love to learn new skills and to get things done. However some days it just feels like an uphill battle to even get out of bed and this is mainly for me because of fatigue and pain! This morning I woke up in pain, a usual day and so I got up and headed downstairs to make myself a tea and have my tablets. However, when the usual time I have to wait for them to kick in had long passed and I was still in pain I realised it was simply going…
Forgiveness with Yoga
Hey everybody! So on January the first I started a 31 day Yoga programme with Yoga with Adriene and I was determined that I was going to get back to daily yoga no matter what! Now we are nearing the end of February and I did day 15 today! I got to the end of the practice and felt like a failure, I am half way through something I should have long finished because of my stupid fatigue! I used to do daily yoga and I felt good because of it, in fact at one point last year I was able to get up do a little housework, 20minutes of…
Panic at the computer
Hey everybody! First of all I am so sorry that I missed updating the blog on Wednesday but I have had a very trying week and I really want to explain! On Monday my external drive crashed, it just stopped talking to my laptop and I was panicking so much! I have saved so much stuff since I started online over a decade ago and it was all on that drive…word docs, writings, fanart you name it if it was geeky it was there and I could not get to it! Thankfully my Grandad’s friend John knows tons about computers and he installed a programme to get the files off…
Letting go of my Depressed Life
Hey Everybody! So today I did something big…I cleared out my DVDs! The picture here I found on google but my collection was not far off it!! When I first got sick I was young, I had just finished university and qualified as a nurse, I had a boyfriend and I lived alone in a city away from my parents. I was happy and I had a five year plan everything was going well. But because I could barely walk I lost my job, and I was living in a nurses home so I had to move out basically everything fell away from me in weeks and I soon found…
