Push for what’s right
Last week was not the easiest, I had to go to court to fight to get my disability benefits back. It was so stressful, and caused a flare, but sometimes you have to push for what’s right. I was surprised at how friendly the people at court were, there was a judge, a doctor and a disability specialist. There was also a secretary who took us inside after explaining exactly what was going to happen. They asked us questions rather than letting us talk which was a lot easier. The worst part of the whole thing has been the flare of my illnesses it caused. The travel and the stress…
Some answers, pain and dog training
This week has been difficult for me, but it has provided some answers, pain and dog training a combination I must admit I hadn’t thought would ever go together! I am thankful though and I am keeping my spirits up something that is so important when your illnesses are flaring. As you know I have been suffering with gastric problems for about a year now after a nurse gave me some antibiotics. I have had pain all this time and though I have done all I could to try and help my situation through diet I knew there wasn’t much I could do myself. This last Friday I went to…
A new norm to get used to
I think anyone reading this who has chronic illnesses would tell you that after a while you get used to the symptoms. It becomes the norm and before you know it you can no longer remember how it feels to be well. But then something new pops up your head and before you realise it there is a new norm to get used to. This week I had a gastroscopy I had it with sedation because I didn’t want to remember the process, since then I have had nausea and stomach ache. Not that it’s a surprise, but I’m glad I got a chance to have it by the wonderful…
How can I help my fatigue?
How can I help my fatigue? I am sure if you suffer with it you have asked yourself this many times just as I have!
A new daily routine
So, as you know if you are a regular reader of my blog, we got a new dog his name is Dexter and he is a 5year old shih tzu. We have had him a couple of weeks now and he has really settled in well just becoming a part of the family and we love him. However, he is a higher energy dog than Gizmo ever was even as a puppy and I’m trying to work out a new daily routine. Lee is now back at work, so I am with the dogs most of the time on my own they both seem to be battling for my attention…
Tips for travel with chronic illness
I am going away this weekend and I am so excited; I am going to a convention dedicated to the TV show Once upon a time! I have been attending events run by Starfury decades and honestly, I think they are the best. The problem is even though I am going away my fatigue and chronic pain doesn’t take a break. I wanted to share some tips for travel with chronic illness because its important to share what works for us. I cannot remember the last time I had a day without pain, maybe never I mean I remember being in so much pain as a child. But as an…
Alternative Marie Kondo method for chronic illness
Hey everybody! Wow I cannot get a hold of my fatigue at the moment, and I think anyone who has the same issue will understand my problem. You see not too long ago a woman gained fame on Netflix for her show about decluttering and she is Marie Kondo! The problem I found was the Marie Kondo method is not really practical when you live with chronic illness and especially chronic fatigue. So, I had to come up with an alternative Marie Kondo method for chronic illness! Chronic fatigue is something that is very hard to deal with because people think it is just feeling tired so they assume if…
Let’s talk about mobility aids
Let’s talk about mobility aids so that’s things like walkers, walking sticks, crutches, wheelchairs of all the various kinds. Anything that helps us get around in the chronic illness community a lot of people use them not all wheelchair users have to be in a wheelchair full time. Not everybody who uses a walking stick needs it all the time and I think is this big gap between what society expects and what is needed. I’ve heard of people getting abused, getting shouted at even violence because of parking in disabled parking bays! So, it’s no wonder that we feel a little bit hesitant to go outside with a walker…
Why cinema trips can be hard with chronic illnesses
Hey everybody! I think it is important to look at how disability impacts normal life, and for most people cinema trips are normal. That is why today we are talking about why cinema trips can be hard with chronic illnesses. Avengers Yesterday I went to see Avengers Endgame, and oh my goodness was I excited! I got dressed up as you can see, and we went to the lunchtime showing because we couldn’t wait. However, almost as soon as I came out of seeing the film I was reminded why there are so many films I have to miss. I love going to see a movie, it is one of…
Tips and Tricks for coping with bad depression days
Hey everybody! So this week kind of started out badly because somebody I trusted as a friend lied to me and hurt me. This triggered some really horrible memories from when I was a child and left me full of negative thoughts and feelings. I had a couple of bad mental health days but I am proud of how I coped and wanted to share some tips and tricks for coping with bad depression days. Self-care is a big part of my personal plan when it comes to bad mental health days. I’ve suffered depression since I was 14 so I’ve had a lot of bad days bad spells and…
