Tips for travel with chronic illness
I am going away this weekend and I am so excited; I am going to a convention dedicated to the TV show Once upon a time! I have been attending events run by Starfury decades and honestly, I think they are the best. The problem is even though I am going away my fatigue and chronic pain doesn’t take a break. I wanted to share some tips for travel with chronic illness because its important to share what works for us. I cannot remember the last time I had a day without pain, maybe never I mean I remember being in so much pain as a child. But as an…
Alternative Marie Kondo method for chronic illness
Hey everybody! Wow I cannot get a hold of my fatigue at the moment, and I think anyone who has the same issue will understand my problem. You see not too long ago a woman gained fame on Netflix for her show about decluttering and she is Marie Kondo! The problem I found was the Marie Kondo method is not really practical when you live with chronic illness and especially chronic fatigue. So, I had to come up with an alternative Marie Kondo method for chronic illness! Chronic fatigue is something that is very hard to deal with because people think it is just feeling tired so they assume if…
Let’s talk about mobility aids
Let’s talk about mobility aids so that’s things like walkers, walking sticks, crutches, wheelchairs of all the various kinds. Anything that helps us get around in the chronic illness community a lot of people use them not all wheelchair users have to be in a wheelchair full time. Not everybody who uses a walking stick needs it all the time and I think is this big gap between what society expects and what is needed. I’ve heard of people getting abused, getting shouted at even violence because of parking in disabled parking bays! So, it’s no wonder that we feel a little bit hesitant to go outside with a walker…
Why cinema trips can be hard with chronic illnesses
Hey everybody! I think it is important to look at how disability impacts normal life, and for most people cinema trips are normal. That is why today we are talking about why cinema trips can be hard with chronic illnesses. Avengers Yesterday I went to see Avengers Endgame, and oh my goodness was I excited! I got dressed up as you can see, and we went to the lunchtime showing because we couldn’t wait. However, almost as soon as I came out of seeing the film I was reminded why there are so many films I have to miss. I love going to see a movie, it is one of…
Tips and Tricks for coping with bad depression days
Hey everybody! So this week kind of started out badly because somebody I trusted as a friend lied to me and hurt me. This triggered some really horrible memories from when I was a child and left me full of negative thoughts and feelings. I had a couple of bad mental health days but I am proud of how I coped and wanted to share some tips and tricks for coping with bad depression days. Self-care is a big part of my personal plan when it comes to bad mental health days. I’ve suffered depression since I was 14 so I’ve had a lot of bad days bad spells and…
Mobility aids,You Tube awards and Dr Phil
Hey everybody! I am sorry I have not been as reliable with my posting recently, my health was kicking up a fuss and I needed to rest I hope you understand? I was in a flare and I am recovering now but my goodness the house is a mess! You can tell I have not been able to keep up with cleaning and my goodness is it annoying! On top of that this last week has had my attention on strange things like mobility aids,You Tube awards and Dr Phil! So I realised that recently on Instagram, as I scroll my feed, I have been noticing people announcing that they…
Flaring But Fighting
Hey everybody! If you read my last couple of blog posts, you will know that the lovely people at the DWP decided to take my PIP benefit from me! The stress of losing my PIP benefit has really hit me flaring my pain, fatigue and depression so I’m flaring but fighting! I have been really suffering with pain especially in my shoulders and arms, and that horrible dull ache in the back of my neck is back! That lovely pain is what triggers a migraine after a while so I am really hoping meditating more and trying to keep moving will help. I feel a little like a zombie at…
Frustration with Fatigue
Hey everybody! So like I mentioned earlier this week, my fatigue has kicked things up a notch and I am really hoping this is just a flare to do with the anaemia I have been put on iron tablets for. This week has been full of frustration with fatigue stopping me doing most things I want to do and when I push through it pushes back! I have started trying to do my physiotherapy exercises every other day, she told me to do them like that so they didn’t make me too tired. Then on the day I do not do that I thought I could do a little cleaning…which…
Fighting fatigue and gaining confidence
Hey everybody! First of all I am very sorry I did not have a blog post out to you on Friday last week I think things caught up with me. I have been fighting fatigue and gaining confidence two things that shouldn’t go together but this week strangely do! As you know I had a bit of a stressful week with going to two disability benefits reassessments in one week! I really feel as if dealing with that has increased my fatigue to a point where I wake up a lot later in the morning than usual, and spend most of the morning, laying in bed looking more zombie than…
Dealing with a busy and stressful week
Hey everybody! Wow last week was a bit of a nightmare! It was such a busy and stressful week and that is why I didn’t have a blog post on Friday I was so wiped out and I still am! The week before I got letters saying I have to be reassessed for both of my disability benefits. I hate when they do this and if you are in England and unable to work I am sure you can understand why I was so stressed about it. People who are not specialists and doctors, unlike the specialists and doctors who diagnosed us, sit and ask us questions then someone else…
