Unrest film review
Hey everyone! So I am on antibiotics at the moment and they are really making me feel awful! So I got up this morning and thought I would order Unrest on Amazon and give it a review. Unrest centers around Jennifer Brea and her husband who are both intelligent and adventurous people who love travelling and as I put it ‘grabbing life by the balls’. Then Jen got sick with a virus and their lives changed drastically as she became sick with Chronic Fatigue Syndrome or Myalgic Encephalopathy. We follow her journey as she records her life, her struggles to cope with her husband becoming her carer, we see her interview…
Feeling frustrated at the doctors
Hey everybody! So a couple of weeks ago I posted THIS post, in it I spoke of how I feel let down since my diagnosis was changed from Multiple Sclerosis to Fibromyalgia, Chronic Fatigue Syndrome, and neurological problems they did not look into. I felt strange doing it, but I sent the surgery a link to the article and soon was called to see the doctor to discuss it. That appointment was yesterday and I really do not know how I feel about how it went! They listened to me and referred me to people to try and help I have been referred to a rheumatologist to hopefully take over…
Be your own advocate
Hey everybody! So a couple of posts ago HERE, I talked about how I felt the NHS had let me down because since my diagnosis was changed from Multiple Sclerosis to Fibromyalgia and Chronic Fatigue Syndrome. I have had hardly any medical intervention since then and have felt like nobody cared, this started me feeling depressed and lost and honestly I had stopped going to see my GP because I never got answers I wanted and I just put up with worsening symptoms. So after thinking about it for a little bit, I sent an email to my doctor’s surgery with an explanation and a link to that post. I…
Staying positive during a flare
Hey everybody! Yeah my body right now is painful, my joints hurt, my head aches and I am struggling to get enough energy to keep up with the housework and overall this is what we call a flare! Everyone with chronic illness knows what I mean by a flare, it is when your symptoms get worse and new symptoms even sometimes come to join the party! When this happens it can be very easy to feel like a useless, painful lump on the sofa and wonder why your loved ones put up with you. I often feel guilty that my wonderful husband has to help me and I can fall…
Feeling let down by the NHS
Hi everybody! So this is a difficult thing for me to say, I was trained as a nurse in the NHS and I worked with them for a couple of years before I got sick. I love that we have a national health service that is free on point of contact, anyone here can be seen and treated for any health condition without having to worry about how to pay. I hate that the Conservatives are starving it of money and resources but I hope that it can be saved because healthcare should not be something you forego because of the cost! When I first became sick I was treated…
The importance of reconnecting with old friends
Hi everybody! So yesterday an old friend from school came round to see me for a cup of tea and a catch up. Now to most people this might seem very boring and not out of the ordinary at all but it meant so much to me and I want to explain why. First of all, she got in touch with me because she found my blog, and when she did and started reading she was amazed at how similar our symptoms and experiences with chronic pain and fatigue were. She emailed me and we started to talk and arranged for her to come visit, and if you have been…
Quell Relief review
“I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. “ Hey everybody! So I was sent the Quell a few weeks ago as I said, and it is a great little product so let’s get into the details of it. The website says that it stimulates sensory nerves, taps into the body’s natural pain relief response, sensory nerves carry neural pulses to the brain, and that they trigger a natural response that blocks pain signals. These are big claims and…
Fighting with fatigue
Hey everybody! First of all sorry I needed to take a little break but it has to be expected when you run a blog with chronic illnesses! Also I had my PIP assessment which is to see if I qualify for a benefit here in the UK and the stress and worry from that has not helped! However, here I am half asleep and frankly p***ed off!!! My fatigue has flared and I honestly feel like I am trapped inside my body! I try to keep up with my housework and to do things that make me feel human, like shower and wash my face and get dressed, but it…
Let’s talk about fatigue
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My changing relationship with yoga
Hey everybody! First of all I apologise for not writing a post last week! There was supposed to be someone to come and assess me for PIP the new disability benefit in the UK. I was so stressed it made my pain worse, and so I was struggling with so much…and then on top of that they just did not show up and did not call to explain! I have another appointment but I am not looking forward to all the stress it will bring. Anyway, yes that is why I did not post anything last week, I apologise. So, I have been practising yoga now for about six years…