Coping with chronic fatigue
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When pain isolates
Hey everybody! So this morning I woke up crying, I had slept passed my alarm and my pain was to a point where I was crying. It was so painful literally everywhere that I couldn’t move and I felt sick, I knew I needed my tablets and I knew I had to force myself to eat…not easy to do when you feel like this. More and more I am finding my pain is breaking through my pain meds, and yes I have tried CBD oil but it makes me drowsy so it would still stop me doing things! When my pain is this bad it is almost impossible to contemplate…
It’s tiring being chronically sick
Hey everybody! I am feeling a little overwhelmed and tired, and it is all because I want to be able to be a person a normal person and I want to do things and get things done but my body feels so heavy and painful and tired! I sometimes feel like I am trapped in a body that does not want to do the things I do so it tries to hold me back and stop me from doing what I want to do! For example, today has been a good day I have done a short yoga sequence, cleaned the bathrooms, had a shower and now I want to…
Nights out with chronic illness
Hey everybody! Yesterday was a big day for me, I love making new friends and going out, but when you have an anxiety disorder it can easily spiral into something you force yourself through instead of enjoying yourself. I was going out with one of my best friends to celebrate her getting married, we first went out to learn to make cocktails in a really nice bar, and then to a different place to eat a lovely meal. We went out to a big city close to where we live, but it was still an hour each way on the train and walking from place to place though thankfully they…
Summertime with chronic illness
Hey everybody! Phew it is getting hot here in Britain, something we are not used to and even though we know it is coming we never seem to be prepared for it. I know many people here complain we do not get much of a summer, but when it comes I must admit many of us Brits end up complaining about how stiflingly hot it is! Today I am in a sundress, something you rarely see, my legs, are on display and I am doing my best to get my jobs done though my pain is bad today. The heat seems to make my hands and feet swell, and I…
Getting back to my routines after a flare
Hey everybody! The last year has been incredibly hard for me, I lost my Granddad, I had a flare of my fibromyalgia and my depression crashed down on me. I stopped really caring about how my house looked, how clean and tidy it was, I stopped looking after myself and just got lost in symptoms, and depression. After recently seeing a psychic (HERE is a video about that) I found my depression and grief lifted and I started to realise that I wanted my life back. I might have constant pain, anxiety, fatigue and neurological problems, but I like my life and I am happy. I don’t expect a lot…
Dealing with anxiety in a scary world
Hey everybody! Wow is it just me or is the world getting crazier? Here in the UK we have had a concert in Manchester bombed and now stabbings and people hit with a van in London…I am in a small town but I have friends all over and who knows where the next attack is going to come from? Now I know this will go against the first sentence I wrote up there, but I in fact do not think the world is getting crazier. I have lived through the IRA attacks, I have seen bombings and shootings and wars all over the world and I ask myself, when will…
Increased pain and possible alternatives
Hey everybody! Summer is here in England, and as we Brits know that means it is hot, humid, stormy and can be raining in the morning, blazing sun in the afternoon and that night have a storm! The problem for us fibromyalgia sufferers is that means our symptoms start to shout and make themselves known and mine certainly are! I have been having a lot of sinusitis, headaches, pressure migraines, burning pain in my arms and legs, and increased pain in my shoulders, upper back and neck…basically I hurt everywhere and the medications I am on from the doctors are not really helping anymore! Usually I would make an appointment…
Recovering after adventures with chronic illness
Hey everybody! Phew what a week!!! Monday I travelled alone by train to London to stay with my best friend Louise, we both have chronic illnesses so we mainly rested, but we did go to see two plays! And then I came home, rested for one day and then went to a convention where I met some of the cast from IZombie! London is overwhelming in itself because of me mostly being home alone and being in a small town, but add into that a convention and I feel dreadful! My pain level is about 11/10 and my fatigue saw me not get out of bed until 3pm today!!! I…
Travelling with Chronic Illness
Hi everybody! So I am really excited I am going to London tomorrow for a few days to spend some time with my best friend Louise and to see some plays. London is not the most disabled friendly of cities and I find it can be a case of lots of planning when it comes to making it happen. Thankfully, Louise has lived all her life just outside London, and has suffered with chronic illnesses for most of her life so she is used to dealing with things and is great at navigating the city. Both she and I suffer with fatigue so we have nothing planned during the days…