I am going away this weekend and I am so excited; I am going to a convention dedicated to the TV show Once upon a time! I have been attending events run by Starfurydecades and honestly, I think they are the best. The problem is even though I am going away my fatigue and chronic pain doesn’t take a break. I wanted to share some tips for travel with chronic illness because its important to share what works for us.
I cannot remember the last time I had a day without pain, maybe never I mean I remember being in so much pain as a child. But as an adult it’s my chronic fatigue that holds me back more than anything and the frustration sometimes gets to be too much, as you know if you regularly read this blog!
Today I dusted my living room, it’s not a big room by any means, but still it wiped me out, by 3pm I was asleep. I have had such bad fatigue for months now and I used to go to my DRs about it but honestly, they do not have anything they can do or give to help. It’s just a constant juggle between keeping my body moving and not doing too much so I trigger a flare.
Tips for travel:
On the run up to a weekend away it’s even more important to
keep the balance and not allow all the things I need to do make me sick. So, if
you have something important coming up and you are having this problem here is
how I cope:
Pacing – this is top for a reason, listen
to your body and take your time you can still do things but you need to do them
slowly and rest in between
Prioritise – if you have a few days to
get things done make a list and work out what is most important and what can
wait until you get home again.
Ask for help – the people around you want
you to have a nice time so if they can they will help all you have to do is
Listen – your body constantly speaks to
you so start listening! Now is not the time to be stubborn if you want to be
able to have fun then rest, nap and stay hydrated
Plan – break any job into smaller bites
so you can rest and you aren’t doing too much at once
Be patient – you can only do your best
things can wait until you get home you are coping with more than most people
could imagine and you deserve a nice break away
I hope this helps you if you are getting ready to go away
and have fun or even if you are staying home these tips for travel with chronic
illness can help at any time.