Its Ehlers-Danlos Awareness Month
Yes it is that time of the year again when all of my illnesses have their awareness month! This year I thought I would concentrate on one illness a week or I might get overwhelmed. So this week its Ehlers-Danlos…
Chronic Migraines
Chronic migraines are a problem for so many people, and something I have suffered from for a long time myself. I thought it was about time I did an article about triggers and how I deal with them. In doing…
Body positivity when disabled
Body positivity when disabled is not easy, everything in media and in society in general is negative about disability, most of the time we are kind of forgotten. Otherwise we can be made to feel guilty or judged by how…
Building a routine for mental health
I have to be honest, I am a creature of habit and I love when I know where I am and what is happening. Building a routine for mental health has been such an incredible part of my dealing with…
Rest is Self Care
I think so many of us, disabled or not, think that rest is wasting time or not being productive enough. I felt the same for a long time, but I have found rethinking it as rest is self care really…
When pacing goes wrong
I think we have all had times when pacing goes wrong and end up doing so much more than you meant. It is part of living with chronic illnesses that cause fatigue, and so is the guilt! So I thought…
Disabled community stop doing this in 2021
I think I can safely say you are not alone in doing these things, I am as guilty of it as you are. But disabled community stop doing this in 2021 please? Can we move forward with a collective agreement…
Everyday Sacred Self-care
It can be so hard to think of ways to practice everyday sacred self-care. We all know what self-care is, and that we should do it, but everyday? Today I wanted to speak more about how to bring the ritual…
A chronic illness photography study
Last week I was contacted by Ashley Oman on Instagram, they asked if I could help promote a chronic illness photography study. They are a university student working with two nursing students. Aiming to look into the lived experience of…
Getting back to exercise
Exercise has been important to me for many years now and for a long time I did yoga every day. Looking after my joints and muscles helps my pain and protects my hypermobile joints. But with increased fatigue, and moving…
