So summer has finally arrived
So, summer has finally arrived in England and for those of us with chronic illnesses who find it hard to regulate our body temperature it’s not great! Honestly, I cannot step outside to enjoy the sunshine because it is so bright and hot, but our houses are insulated so it’s really hot inside too! Currently I am sat on my sofa in the living room, but yesterday I spent the whole day in bed tired, in pain and with a really bad headache. Today is much the same except my EDS joints are very unstable and painful and I am sat in the living room which is the coolest room…
Mid-year goals
It is July and though the weather here in the UK is very up and down and not very summery, I do realise we are half way through the year. I read this post by Living with ME yesterday and I thought it was a wonderful idea. Yesterday was a big day because I did get an award nomination and started thinking about my mid-year goals. At the start of the year I did make this post stating my Resolutions and affirmations for 2019. Now we are half way through the year I think it is important to think about the things we want to achieve by the end of…
Get to know me tag
So today is day two of a headache, I am struggling a bit and because of the brain fog it caused me I have not had a chance to think of what I want to talk about. Usually I would think of something but a google search led me to the ‘Get to know me tag’ which was made for You Tube. Though I do have a you tube channel I thought it would be a good chance for readers to get to know me better. Hope you enjoy – Get to know me tag: 1. Where did you grow up? I grew up in a small town in Staffordshire…
Am I in a flare?
So if you follow me on Instagram you will know that I have had a busy couple of weeks! I went to a weekend convention to meet some of my favourite Once Upon a Time actors, and then the following weekend we went to London to see Billy Joel in concert. I thought I had rested enough and been careful but then this week I have been asking myself…Am I in a flare? While I was at the convention I woke one morning with a lot of pain in my lower back like I had pulled something or trapped something. I have been treating it with heat ever since however…
Blooming Mindfulness award
Oh my goodness I am so excited and thankful that Back Pain blog UK has nominated me for an award that was set up by Pamela Jensen from There is Always Hope. The Chronically Hopeful Award is, in her words, “to recognise the incredible people who blog about chronic illness, mental health and disability.” This meant so much to me because both of these blogs are favourites of mine who I have been subscribed to for years. Both of these incredible people inspire me to keep writing and to strive to bring some light into this world. There are many blogs out there, but I think all three of us can…
5 Tangible Ways to Fight Anxiety
This is a contributed post written by Laurie Larson Anxiety has become nothing short of a modern pandemic. Millions of people around the globe are suffering from different types of anxiety and many of them are doing so in silence. Anxiety can feel crushing. It can make you feel powerless, defenseless, and vulnerable in the face of a terrifying bodily response you can’t control. It’s important to remember that you’re not alone. Taking time to remind yourself that you’re valuable, people care about you, and that your feelings are valid is the kind of self-care that can really make a difference. If you’ve found your way to this guide because…
Tips for travel with chronic illness
I am going away this weekend and I am so excited; I am going to a convention dedicated to the TV show Once upon a time! I have been attending events run by Starfury decades and honestly, I think they are the best. The problem is even though I am going away my fatigue and chronic pain doesn’t take a break. I wanted to share some tips for travel with chronic illness because its important to share what works for us. I cannot remember the last time I had a day without pain, maybe never I mean I remember being in so much pain as a child. But as an…
Feeling overwhelmed and lost
Feeling overwhelmed and lost is something unfortunately I have come used to over the last couple of weeks. My health has not been the best, I’m trying to lower the dose of one of my meds, I got a virus that landed me in A&E….yeah it’s not been fun! Let’s start with the opioid crisis, I’m sure most chronic illness warriors have heard of this and it was just affecting America. However, it would seem that our government have taken a note from there and changed one of my meds to a class C drug. So I had to have a phone call with my GP practice pharmacist to see…
Life is like a Tapestry
Hey everybody! Today’s blog post is very much inspired by my friends podcast Hero’s Breath, this podcast is very much opening my mind and I’m very grateful for that. This last week my health has not been great and it has been a struggle, but what I came to realise by listening to this podcast was life is like a tapestry. So often in my life I have been asked how I can have faith in God when there is so much famine, war and pain in the world. How can I love a God that allows people to suffer and animals to be in pain etc, especially by my…
Meet Mindful Moe
Hey everybody! As you all will know well, mindfulness and meditation is so important to me and I talk about it often! I really think if everyone learned to meditate it would change the world, so when I met Julienne on Instagram I got excited! This amazing woman wants to teach children to meditate and she wants to do it with a teddy bear she designed called Mindful Moe! So how can you get a toy for your child? Here is more information from their press release: Meet Mindful Moe – the Cuddly Pug that teaches Mindfulness to your Child. Encouraging the mental, emotional, social health and well-being of Children.…