Making spoonie lists
Hey everybody! So this week my body is trying to kill me plus I am listening non-stop to Ed Sheeran so be thankful I am here and let’s just get into it shall we? So the other day I was in the shower, it was not the best of days so I was listing in my head the things I needed to do…wash my face, shampoo my hair, wash my body…then I realised what I was doing and I wondered if any other Spoonies out there do the same thing? Since the shower I realised that I don’t just work out my spoons (The Spoon Theory) for the week, or…
Getting Motivated with Fatigue
Hey everybody! I am someone who finds it easy to be organised and to motivate myself, I love to learn new skills and to get things done. However some days it just feels like an uphill battle to even get out of bed and this is mainly for me because of fatigue and pain! This morning I woke up in pain, a usual day and so I got up and headed downstairs to make myself a tea and have my tablets. However, when the usual time I have to wait for them to kick in had long passed and I was still in pain I realised it was simply going…
Forgiveness with Yoga
Hey everybody! So on January the first I started a 31 day Yoga programme with Yoga with Adriene and I was determined that I was going to get back to daily yoga no matter what! Now we are nearing the end of February and I did day 15 today! I got to the end of the practice and felt like a failure, I am half way through something I should have long finished because of my stupid fatigue! I used to do daily yoga and I felt good because of it, in fact at one point last year I was able to get up do a little housework, 20minutes of…
Panic at the computer
Hey everybody! First of all I am so sorry that I missed updating the blog on Wednesday but I have had a very trying week and I really want to explain! On Monday my external drive crashed, it just stopped talking to my laptop and I was panicking so much! I have saved so much stuff since I started online over a decade ago and it was all on that drive…word docs, writings, fanart you name it if it was geeky it was there and I could not get to it! Thankfully my Grandad’s friend John knows tons about computers and he installed a programme to get the files off…
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Self Care with chronic illness
Hey everybody! So here in England at the moment it is very grey skies and freezing cold and raining most of the time…aka the perfect breeding ground for depression to creep up behind you and slowly start taking over! I realised a couple of days ago that I had been skipping my lunch, so my fatigue was worse which meant I was not doing as much which made my depression worse…and so on. When I realised this the cosmos knew and two of my favourite you tubers Simply Quinoa, and Mae Flowers posted videos about lunch ideas! I mean seriously thank you universe! Simply Quinoa especially posted a video about meal prepping,…
How to deal with bad days after an event
Hey everybody! Today I wanted to talk about bad days, and not the random ones that seem to come from nowhere and knock you off your feet! No I am talking about the ones you have to plan for because you are going out with friends or going to a concert things like that. Yesterday I had an invite to a party in the afternoon, it was my next door neighbors house and something that is rare. It was a party for the skincare range Tropic and I loved the idea of going to see the range and learn more about that. I also really wanted to go because I…
Funky Soap Shop review
Hey everybody! So anyone with Fibromyalgia, and some other chronic health conditions, will know itching and rashes can be a problem. I started out trying shower gels with moisturiser built in and had no luck, in fact the more I used these sort of products the drier and itchier my skin became! Then just over a year ago I decided that I was sick of so many chemicals in my life, I started to make my own cleaning products and body butters. I was beginning to think chemicals and plastics might be why there is so much chronic illness about and I wanted to stop spraying it around my house…
Dealing with anxiety in a scary world
Hey everybody! So after the events of the last few days I knew I had to mention it and deal with it and talk about how I am dealing with it and then we can just move on okay? So America has a new president, its clear from the turn out for his inauguration that he is not popular not matter what he says. Now I am in England so why do I care? Well mainly because I cannot even think about things here, and also because this man has the ability to make things harder for a lot of my friends and people I know and he could send…
Trying to have patience with my fatigue
Hello everybody! So today I took a 3 hour nap! I woke up after not a great nights sleep and was tired, I knew I was tired but I was excited because I was going to Amanda’s treatment room to have a pedicure and nail art done (Picture is on my instagram). I always love going to see her because she has become a very treasured friend and one of the few people I can be myself with and chat to. I love having stuff done there because I feel relaxed and I get out of the house, which is rare, to just have some girlie time. After the talking and…
Body positivity with a Chronic Illness
Hi everyone! I have been hit full in the face with this over the last couple of weeks and it is something most people can identify with. I love my celebrities however my favourite actress is Nina Dobrev who somehow manages to be skinny, toned and have curves! I love my muscular men like Jamie Dornan, but I know my hubby sees them and wishes he could look like them! Every TV show, film, magazine etc tells us we need to be muscular to be a sexy male and skinny and toned to be a sexy woman…though boobs and a big bum are a must! I have seen things about women…
