Rest is Self Care
I think so many of us, disabled or not, think that rest is wasting time or not being productive enough. I felt the same for a long time, but I have found rethinking it as rest is self care really…
When pacing goes wrong
I think we have all had times when pacing goes wrong and end up doing so much more than you meant. It is part of living with chronic illnesses that cause fatigue, and so is the guilt! So I thought…
Disabled community stop doing this in 2021
I think I can safely say you are not alone in doing these things, I am as guilty of it as you are. But disabled community stop doing this in 2021 please? Can we move forward with a collective agreement…
Getting back to exercise
Exercise has been important to me for many years now and for a long time I did yoga every day. Looking after my joints and muscles helps my pain and protects my hypermobile joints. But with increased fatigue, and moving…
When fatigue flares
Moving house is always stressful and difficult, even if you don’t have chronic illnesses it can take it’s toll. When fatigue flares it can leave you feeling frustrated and annoyed, or trying to push through so you can get things…
Finding a rhythm
As you know, if you have been following recent blog posts and you tube videos, I have moved with my husband to be a carer for my mother. This obviously caused a lot of worry, stress and change to my…
Finding my feet
Finding my feet recently has not been easy, moving in with Mom to become a carer while dealing with my own chronic illnesses never would be! My mother before now has been living alone in my childhood home, and trying…
Stress with a chronic illness
Well the pandemic is still happening though governments are easing everything to make money again. We are in the middle of moving house just the contracts to sign and to sort out a completion date. And my dad’s dog who…
Unpredictable British weather causing pain
Oh yes it is that time of year again, and unpredictable British weather is causing pain! By now I should be used to it, I should be prepared and armed for all occurrences because here we never know what we…
My illnesses awareness month
There are a lot of things I am not good at, including riding a bike, but the main one is remembering dates, birthdays etc. I really suck at it, still it was impossible to escape my notice this month that…
